Table 1.
Characteristics of the online stroke community participants as identified in the posts.
| Characteristics | Frequency | ||
| Participants overall | |||
|
|
Total number of participants, n | 52 | |
|
|
Age of survivor at time of stroke (years), median (range) | 6 (0-17) | |
|
|
Posts | ||
|
|
|
Total number of posts, n | 425 |
|
|
|
Number of posts per participant, median (range) | 3 (1-56) |
|
|
Identity of person posting, n | ||
|
|
|
Stroke survivor | 17 |
|
|
|
Mother | 31 |
|
|
|
Other (aunt, family friend, cousin, mother, and father) | 5 |
|
|
Sex of stroke survivor, n | ||
|
|
|
Male | 24 |
|
|
|
Female | 26 |
|
|
|
Not stated | 2 |
|
|
Time since stroke (years), n | ||
|
|
|
0-1 | 20 |
|
|
|
1-2 | 5 |
|
|
|
>2 | 27 |
|
|
|
Not stated | 0 |
| Participants aged ≤18 years at time of posting | |||
|
|
Total number of participants, n | 41 | |
|
|
Age of survivor at time of stroke (years), median (range) | 4 (0-7) | |
|
|
Posts | ||
|
|
|
Total number of posts, n | 273 |
|
|
|
Number of posts per participant, median (range) | 3 (1-56) |
|
|
Identity of person posting, n | ||
|
|
|
Stroke survivor | 6 |
|
|
|
Mother | 31 |
|
|
|
Other (aunt, family friend, cousin, mother, and father) | 4 |
|
|
Sex of stroke survivor, n | ||
|
|
|
Male | 19 |
|
|
|
Female | 20 |
|
|
|
Not stated | 2 |
|
|
Time since stroke (years), n | ||
|
|
|
0-1 | 20 |
|
|
|
1-2 | 5 |
|
|
|
>2 | 16 |
|
|
|
Not stated | 0 |
| Participants aged >18 years at time of posting | |||
|
|
Total number of participants, n | 11 | |
|
|
Age of survivor at time of stroke (years), median (range) | 13 (0-17) | |
|
|
Posts | ||
|
|
|
Total number of posts, n | 152 |
|
|
|
Number of posts per participant, median (range) | 13 (1-33) |
|
|
Identity of person posting, n | ||
|
|
|
Stroke survivor | 11 |
|
|
|
Mother | 0 |
|
|
|
Other (aunt, family friend, cousin, mother, and father) | 0 |
|
|
Sex of stroke survivor, n | ||
|
|
|
Male | 5 |
|
|
|
Female | 6 |
|
|
|
Not stated | 0 |
|
|
Time since stroke (years), n | ||
|
|
|
0-1 | 0 |
|
|
|
1-2 | 0 |
|
|
|
>2 | 11 |
|
|
|
Not stated | 0 |
|
|
Participants who stated they were... | ||
|
|
|
Holding a driving license | 2 |
|
|
|
Not holding a driving license | 2 |
|
|
|
At university or some university | 4 |
|
|
|
In full-time employment | 1 |
|
|
|
In part-time employment | 1 |