Table 1.
AHWG meeting information (held over 11 months between 2019 and 2020)*
Date of AHWG Session | Number of Attendees | Topics raised by AHWG members related to Adolescent Health and HIV in Durham Community |
---|---|---|
August 2019 | 25 (20 adults, 5 youth) | • Religion, churches, faith community as partners in this work • Access to care is an issue, (insured youth unwilling to talk to parents)* • Finding Same Gender Loving Black men as community advocates • “Seasons” of HIV risk for youth at different ages must be considered • Understanding larger issues than health or HIV in the community* • Structural barriers to HIV prevention medication (PrEP) and staying in care • Youth and transportation are barriers to AHWG and also getting HIV care* • Youth must be taught more sex education in schools • Making sure we do not silence youth in this work* |
September 2019 | 18 (12 adults, 6 youth) | • PrEP needs to be available for the whole community • HIV challenges are different for youth and grown-ups* • Reaching youth must be done at the right place with the right info* • Involving parents, trusted adults and the community to reach youth over time is necessary for sustainability • PrEP info is for everyone should not be only for specific groups • Youth leadership has to be the focus of our activities* |
October 2019 | 21 (13 adults, 8 youth) | • How to address concerns about the PrEP lawsuit that had received media coverage • Lack of school-based education on sex and contraception* • Finding youth spokespeople who are willing to share their journey, perhaps those living with HIV* • Getting PrEP, affording PrEP, and privacy in taking PrEP are real challenges • Finding PrEP materials that don’t discuss ‘high risk’ is imperative* • Using art to share our mission and educate youth about HIV can reach a young generation* |
November 2019 | 19 (12 adults, 7 youth) | • Finding youth spokespeople who are willing to share their journey* • Allowing youth to decide the title for Youth GO (boring) • Finding PrEP materials that don’t discuss ‘high risk’ • Addressing perceptions about study eligibility for Aim 3 surveys • which did not specify ‘Black youth’ or ‘LGBT youth’* • Figuring out how to create a ‘youth-only advisory board’ which is not the AHWG but can advise its members (possible via Youth GO?)* |
February 2020 | 16 | • Sex education and PrEP counseling need to addressing power and consent around condoms and sex • Future programs must address that youth staying on PrEP every day will be hard* • Programs like this should not disappear as soon as the ‘funding ends’ • HIV and PrEP programs need to be cognizant of the many other things our community is dealing with such as racial injustice and police brutality and violence |
June 2020 (virtual) | 20 (12 adults, 8 youth) | • Getting PrEP, affording PrEP, and privacy in taking PrEP are real challenges • Finding PrEP materials that don’t discuss ‘high risk’ is imperative* • Using art to share our mission and educate youth about HIV can reach a young generation* • HIV and PrEP programs need to be cognizant of the many other things our community is dealing with such as racial injustice and police brutality and violence • AHWG participants want to see newsletters with periodic updates from the program including study results • Periodic AHWG meeting just to ‘catch up’ virtually would be welcome* |
denotes topics that were concerns voiced by youth