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[Preprint]. 2024 Mar 19:rs.3.rs-4100219. [Version 1] doi: 10.21203/rs.3.rs-4100219/v1

Table 5.

Self-reported areas of need for SLT/Ps working with PwPPA and the tools SLT/Ps request based on those that exist for other populations.

Rank Gap in knowledge, access, or support %
1 Designing intervention approaches for PwPPA 59.7%
2 Providing care for advanced stages and end of life 55.5%
3 Providing family and care partner education 54.6%
4 Providing intervention/assistance with technologies and AAC devices 52.9%
5 Providing counseling to family and care partners of PwPPA 46.2%
6 Understanding and/or identifying a diagnosis 44.5%
7 Providing counseling to PwPPA 41.2%
7 Finding continuing education opportunities for working with PPA 41.2%
7 Advocating for reimbursement, coverage, or funding for PwPPA receiving SLT/P services 41.2%
10 Establishing goals of intervention for PwPPA 40.3%
11 Providing client education 39.5%
12 Providing education or advocating for your unique role as a SLT/P in the care of PwPPA 32.8%
13 Interacting with other healthcare professionals involved in the care of PwPPA 29.4%
14 Referring to other healthcare professionals 15.1%
Rank Requested tools that exist for other populations %
1 Online video courses (e.g., via MedBridge [U.S.A.-based continued education resources], internet-based instructional videos for different communication disorders) 84.0%
2 Sample tools and activities for intervention 63.0%
3 Sample goal banks for each PPA variant 54.6%
4 Access to a SLT/P support network 51.3%
5 Printable brochures related to diagnostics and information for families 47.1%
6 In-person or online workshops related to the diagnosis, assessment, and SLT/P intervention for PPA 45.4%
7 Access to a PPA support network geared towards clients 44.5%
8 Lived experiences of PwPPA (e.g., via documentary, biographical videos or short articles) 40.3%
Rank Gap in knowledge, access, or support %
9 Journal articles 26.9%
10 Textbooks 22.7%