Table 5.
Self-reported areas of need for SLT/Ps working with PwPPA and the tools SLT/Ps request based on those that exist for other populations.
Rank | Gap in knowledge, access, or support | % |
---|---|---|
1 | Designing intervention approaches for PwPPA | 59.7% |
2 | Providing care for advanced stages and end of life | 55.5% |
3 | Providing family and care partner education | 54.6% |
4 | Providing intervention/assistance with technologies and AAC devices | 52.9% |
5 | Providing counseling to family and care partners of PwPPA | 46.2% |
6 | Understanding and/or identifying a diagnosis | 44.5% |
7 | Providing counseling to PwPPA | 41.2% |
7 | Finding continuing education opportunities for working with PPA | 41.2% |
7 | Advocating for reimbursement, coverage, or funding for PwPPA receiving SLT/P services | 41.2% |
10 | Establishing goals of intervention for PwPPA | 40.3% |
11 | Providing client education | 39.5% |
12 | Providing education or advocating for your unique role as a SLT/P in the care of PwPPA | 32.8% |
13 | Interacting with other healthcare professionals involved in the care of PwPPA | 29.4% |
14 | Referring to other healthcare professionals | 15.1% |
Rank | Requested tools that exist for other populations | % |
1 | Online video courses (e.g., via MedBridge [U.S.A.-based continued education resources], internet-based instructional videos for different communication disorders) | 84.0% |
2 | Sample tools and activities for intervention | 63.0% |
3 | Sample goal banks for each PPA variant | 54.6% |
4 | Access to a SLT/P support network | 51.3% |
5 | Printable brochures related to diagnostics and information for families | 47.1% |
6 | In-person or online workshops related to the diagnosis, assessment, and SLT/P intervention for PPA | 45.4% |
7 | Access to a PPA support network geared towards clients | 44.5% |
8 | Lived experiences of PwPPA (e.g., via documentary, biographical videos or short articles) | 40.3% |
Rank | Gap in knowledge, access, or support | % |
9 | Journal articles | 26.9% |
10 | Textbooks | 22.7% |