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. Author manuscript; available in PMC: 2024 Apr 1.
Published in final edited form as: Lancet Diabetes Endocrinol. 2021 Feb 23;9(4):203–211. doi: 10.1016/S2213-8587(20)30402-2

Table 1:

Summary characteristics of the 24 data sources, by country or jurisdiction

Origin of data Type of data Years analysed for incidence Age range (years) Person-years (1000s) Number of incident diabetes cases Diabetes definition Diabetes type
Australia National Diabetes Services Scheme Registry 2002–15 0–89 286 819 859 604 Clinical diagnosis Type 2 diabetes
Canada Canadian Chronic Disease Surveillance System* Administrative 2000–15 ≥1 489 132 3 035 440 Algorithm All diabetes
Denmark National Patient Register, prescription database, health insurance database, diabetes quality database, and eye screening database Registry 1996–2016 ≥0 111 005 351 127 Algorithm Type 2 diabetes
France National Health Data System Administrative 2012–17 ≥0 368 629 1 508 809 Antidiabetes medications All diabetes
Hong Kong Hong Kong Hospital Authority Administrative 2005–16 ≥0 79 742 497 636 Algorithm All diabetes
Hungary National Institute of Health Insurance Fund Management database Administrative 2009–16 ≥0 73 425 295 532 Antidiabetes medications Type 2 diabetes
Israel Clalit Health Services Health insurance 2004–16 ≥0 51 296 357 225 Algorithm All diabetes
Israel Maccabi Healthcare Services Health insurance 2001–15 ≥0 25 548 114 173 Algorithm Type 2 diabetes
Lombardy, Italy Administrative health databases Administrative 2002–12 ≥0 97 951 618 891 Algorithm All diabetes
Latvia Latvian Diabetes Registry Registry 1999–2016 ≥0 38 252 120 753 Clinical diagnosis (ICD-10) Type 2 diabetes
Lithuania National Compulsory Health Insurance Fund Information System Administrative 2003–16 ≥0 42 479 108 279 Clinical diagnosis (ICD-10) All diabetes
Netherlands NIVEL Primary Care Database Administrative 2011–16 ≥0 7306 32 484 Clinical diagnosis (ICPC-1) All diabetes
Norway Norwegian Patient Registry, Primary Care Database and Norwegian Prescription Database Administrative 2009–14 ≥0 29 971 97 325 Clinical diagnosis (ICD-10, ICPC-2) Type 2 diabetes
Russia National Diabetes Register of the Russian Federation Registry 2000–18 ≥0 2 737 313 4 841 628 Algorithm Type 2 diabetes
Scotland, UK SCI-Diabetes database Registry 2004–15 ≥0 60 120 214 548 Clinical diagnosis (Read codes) Type 2 diabetes
Singapore National administrative data (Ministry of Health of Singapore) Administrative 2012–16 ≥0 17 978 126 365 Clinical diagnosis (ICD-10) All diabetes
South Korea National Health Insurance Service–National Sample Cohort Health insurance 2006–15 ≥0 9206 50 515 Antidiabetes medications All diabetes
Spain Information System for the Development of Research in Primary Care Administrative 2007–16 ≥0 53 326 250 987 Clinical diagnosis (ICD-10) Type 2 diabetes
Taiwan National Health Insurance Research Database (LHID 2000) Health insurance 2002–11 ≥0 8845 58 333 Algorithm Type 2 diabetes
UK THIN database Administrative 2000–13 ≥0 113 856 205 498 Clinical diagnosis (physician) Type 2 diabetes
Ukraine System of Diabetes Mellitus Care in Ukraine (Volyn Oblast) Registry 2005–10 ≥0 6057 10 503 Clinical diagnosis (physician) Type 2 diabetes
USA KPNW (integrated managed care consortium) Health insurance 1995–2016 ≥0 9479 54 070 Algorithm Type 2 diabetes
USA Medicare (claims data for beneficiaries) Administrative 2001–15 ≥68 230 852 8 206 913 Algorithm All diabetes
USA NHIS Survey 1995–2015 20–84 534 5672 Self-report All diabetes

ICD-10=International Classification of Diseases, version 10. ICPC-1=International Classification of Primary Care, first version. ICPC-2=International Classification of Primary Care, second version. KPNW=Kaiser Permanente Northwest. LHID 2000=Longitudinal Health Insurance Database, randomly sampled from the registered beneficiaries in the year 2000. NHIS=National Health Interview Survey. NIVEL=Netherlands Institute for Health Services Research. SCI=Scottish Care Information. THIN=The Health Improvement Network. *This Canadian data source excluded data from Yukon Territory and Saskatchewan. Furthermore, data from Nova Scotia excluded people aged 1–19 years.