Table 4.

Main findings identified

Authors and articles	Key findings	Main theme
Oliva-Moreno et al. [37]; Lutz et al. [24];Young et al. [33]; Cameron et al. [30]; Giosa et al. [29]	• Caregivers’ commitment • Caregivers’ capacity • Environment preparedness • Emotional readiness (depression and psychosocial considerations) • Conceptual knowledge of disease	Assess and identify caregiver preparedness
Cameron et al. [30]; Day et al. [32]; Giosa et al. [29]; Hall et al. [26], Gustaffson et al. [35]; Creasy et al. [31] and Perrin et al. [34]	• Skills (changing clothes, moving, toileting, and feeding) • Conceptual knowledge of disease • Role change • Treatment adherence • Stress management • Provision of relevant information and support	Provide relevant information and support
Giosal et al. [29]; Hall et al. [27];Creasy et al. [31]	• Changing clothes • Changing diapers • Toileting • Feeding • Organizing home discharge plans	Care participation until preparation for discharge
Cheng et al. [23], Tseung et al. [27], Cameron et al. [30], Hall et al. [26], Creasy et al. [31], Hughes et al. [25];	• Psychosocial support • Caring support • Knowledge • Financial sources	Supports for caregivers