Table 1.
Sample distribution according to various sociodemographic variables in caregivers of children with NMD.
| Variable | Frequency | Percentage | |
|---|---|---|---|
| Gender | Male | 19 | 17.2 |
| Female | 91 | 82.8 | |
| Marital status | Married | 84 | 76.4 |
| Cohabitating with a partner | 7 | 6.4 | |
| Divorced | 8 | 7.3 | |
| Separated | 5 | 4.5 | |
| Single | 6 | 5.4 | |
| Education level | No school certificate | 4 | 3.63 |
| Compulsory education | 11 | 10 | |
| Post-compulsory education | 15 | 13.63 | |
| Vocational education (intermediate) | 12 | 10.9 | |
| Vocational education (higher) | 16 | 14.54 | |
| Intermediate degree | 16 | 14.54 | |
| Bachelor’s degree | 23 | 20.9 | |
| Graduate | 5 | 4.55 | |
| Master’s degree | 2 | 1.81 | |
| PhD | 6 | 5.45 | |
| Employment status | Employed | 57 | 51.81 |
| Unpaid work | 3 | 2.72 | |
| Self-employed | 7 | 6.36 | |
| Unemployed | 17 | 15.45 | |
| Retired | 5 | 4.54 | |
| Housework | 12 | 10.9 | |
| Student | 7 | 6.36 | |
| Disabled | 2 | 1.81 | |
| Type of NMD | Duchenne muscular dystrophy | 40 | 36.36 |
| Charcot–Marie–Tooth disease | 11 | 10 | |
| Becker muscular dystrophy | 5 | 4.54 | |
| Ullrich muscular dystrophy | 1 | 0.9 | |
| Spinal muscular atrophy | 10 | 9.09 | |
| Steiner’s myotonic dystrophy | 12 | 10.9 | |
| Myopathies | 7 | 6.36 | |
| Arthrogryposis multiplex congenita | 1 | 0.9 | |
| Leukodystrophy | 2 | 1.81 | |
| Waist muscular dystrophy | 4 | 3.63 | |
| Merosin-deficient-congenital muscular dystrophy | 3 | 2.72 | |
| Muscular dystrophy caused by a mutation in the FKRP gene | 1 | 0.9 | |
| Hypoplasia | 1 | 0.9 | |
| Spastic paresthesia | 1 | 0.9 | |
| Congenital myasthenia | 2 | 1.81 | |
| Encephalopathy | 1 | 0.9 | |
| Congenital muscular dystrophy with collagen VI deficiency | 3 | 2.72 | |
| Sarcoglycanopathy | 2 | 1.81 | |
| Pelizaeus-Merzbacher disease | 1 | 0.9 | |
| Frederich’s Ataxia | 2 | 1.81 |