Table 1.
Characteristics of Daughters
| Participant | Age at Menarche | Current Age | Diagnosis | Assistive Device Used at School | Use of Birth Control | Bladder Management | Pull-Up at School | Educational Support |
|---|---|---|---|---|---|---|---|---|
| 1 | N/A | 13 | Spina Bifida | None | N | None | N | N |
| 2 | 13 | 17 | Cerebral Palsy | Wheelchair | Y (OCP) | CIC | Y | IEP/Special Ed |
| 3 | 12 | 14 | Spina Bifida | Shoe Insert/Lift | N | CIC | N | N |
| 4 | N/A | 12 | Spinal Cord Injury | Wheelchair, Braces/AFOs | N | CIC | Y | N |
| 5 | 11 | 18 | Cerebral Palsy | Wheelchair, Braces/AFOs | Y (Depot) | CIC | Y | IEP/Special Ed |
| 6 | 12 | 12 | Cerebral Palsy | None | N | None | N | N |
| 7 | 10 | 11 | Cerebral Palsy | Braces/AFOs | N | None | N | N |
| 8 | N/A | 9 | Spina Bifida | Wheelchair, Braces/AFOs | N | None | Y | Special Ed |
| 9 | 8 | 13 | Cerebral Palsy | Wheelchair, Stander | Y (IUD) | Other | Y | IEP/Special Ed |
| 10 | N/A | 9 | Spina Bifida | Wheelchair, Braces/AFOs | N | CIC | Y | N |
| 11 | N/A | 8 | Cerebral Palsy | None | N | None | N | N |
| 12 | N/A | 7 | Cerebral Palsy | Braces/AFOs | N | None | N | N |
| 13 | 13 | 14 | Spina Bifida | None | N | Medications only | N | N |
| 14 | 13 | 13 | Cerebral Palsy | None | N | None | N | Lower Grade for Age |
| 15 | N/A | 12 | Spina Bifida | None | N | CIC | N | N |
| 16 | 9 | 20 | Spina Bifida | Walker | N | CIC | N | N |
| 17 | 9 | 15 | Spina Bifida | None | Y (OCP) | CIC | N | IEP |
| 18 | 12 | 18 | Spina Bifida | Wheelchair | Y (Depo) | CIC | Y | IEP |
| 19 | 11 | 13 | Cerebral Palsy | Braces/AFOs | N | None | N | Special Ed |
| 20 | 10 | 12 | Spina Bifida | Wheelchair, Crutches | N | CIC | Y | N |
| 21 | Unk (“mid-teens”) | 26 | Other congenital cause | None | N | Other | N | IEP/Young Adult Program |
AFOs- ankle foot orthosis; Unk- unknown; OCP- oral contraceptive pills; IUD- intrauterine device; Depo- Depo-Provera shot; IEP- Individualized Education Program