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. Author manuscript; available in PMC: 2024 Oct 1.
Published in final edited form as: Disabil Health J. 2023 Jul 20;16(4):101510. doi: 10.1016/j.dhjo.2023.101510

Table 3.

Parents perspective of factors that influenced their daughter’s experience of menarche and learning to manage menstruation using a socio-ecological theoretical framework

Level Parent’s Perspective of Relevant Factors
Intrapersonal (personal knowledge, self-concept) • Education/knowledge about periods prior to menarche
• Cognitive ability to understand periods
• Emotional response to periods
• Age at menarche
• Sense of burden by current health management routines (e.g., bladder and bowel routines)
• Desire for privacy
• Desire for care from only females
• Relevant health history (e.g., epilepsy)
Interpersonal (individual relationships) • Parent’s ability to educate daughter about what a period
• Parent’s knowledge about best menstrual products
• Parent guilt to ask school caregivers for assistance
• Parent preference not allow school caregivers to help with menstrual management
• Parent sense of burden by current health management routines (e.g., bladder and bowel routines)
• Knowledge of daughter’s health care provider
• Support of daughter’s health care provider
Institutional (systems and community) and Policy (polities and laws) • Lack of health care provider knowledge
• School support
• Availability of female caregivers at school
• Lack of private bathrooms at school
Societal (cultural norms) • Lack of accessible products
• Lack of disability-specific sexual health education
• Societal avoidance of being discrete/not talking about periods (postulated by authors)