| Have educational material (mixture of videos, animations, written information) accessible which explains: what PROMs are, why they are being implemented, how they may benefit patient care, how they work, how data will be handled, and that care access will not be jeopardised with PROM completion. Care should be taken to ensure material is not too onerous. Coproduce educational material with service users to help with accessibility and increase engagement. |
| Ensure the PROM selected for implementation can adapt to patient needs (i.e., large-print, high contrast versions, different languages). |
| Have contact information provided of organisations or key individuals who may be able to support patients to complete PROMs (i.e., Citizens Advice, Support Worker, Assistant Psychologist). |
| Confirm when patients would prefer to complete PROMs (i.e., before a clinic appointment, after a clinic appointment, in between appointments), and where they would prefer to complete PROMs (i.e., at home, in clinic) prior to having a PROM sent to them. Also confirm how patients would like to receive communication about completing PROMs (such as reminders) (i.e., through email, text message, post). |
| Ask patients for feedback on a regular basis (e.g., annually) for how PROM implementation is going and suggestions for improvement. Seek permission from patients prior to asking for feedback on PROM implementation. Where possible, gather input from patients at service evaluations in conjunction with PROM implementation feedback. Ensure patient feedback is from diverse populations. |
| Confirm who patients would like PROM data to be shared with. Allow patients to choose levels of data usage and sharing as part of the consent process (i.e., I do not consent for you to use my data for research use, but you can use it for service level feedback and for my clinician to see if I am in distress). |
| Have a dedicated and private space to complete the PROM in clinic as an option. |
| Have multi-factor authentication set up for electronic PROMs so that patients can securely and remotely access their PROM and so that it cannot be accessed by unintended recipients. |
| Conduct an information session specifically about PROM completion and data use so patients can speak/air their views with clinicians/assistants/peer support about any questions or misgivings. |
| Implement a parallel system for monitoring waiting list patients and outcomes resulting from waiting lists where possible. |
| Have peer support staff available to contact if PROM completion is difficult. Also consider whether and how patients can access a peer support worker who is similar to the patient (i.e., age, neurodivergent, ethnicity). This may mean some of the support is provided remotely or more ad- hoc and the acceptability of this should be ascertained by and led by patients. If the PROM distress falls beyond the scope of peer support services, work in collaboration with third sector organisations like LGBT switchboard or crisis mental health services. |
