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. 2024 Apr 16;19(4):e0301922. doi: 10.1371/journal.pone.0301922

Table 3. Healthcare professional-relevant strategies for integrating PROMs in gender-affirming care.

Healthcare Professional-Relevant Strategies
Identify and prepare implementation champions who can help to oversee and be a point of support for PROM implementation in gender clinics. This may include Identifying and involving staff members (i.e., administrative staff, assistant psychologists) who can help to oversee PROM implementation.
Collect feedback on PROM implementation healthcare professionals. Have feedback collection be part of an overall feedback system.
Develop and provide educational material to healthcare professionals on what PROMs are, why they are being implemented, how they may benefit service provision, how scoring works, and how data will be handled. Use a variety of formats such as videos, animations, written materials, and information sessions. Co-produce educational material with healthcare professionals to increase acceptability and engagement. Address staff responsibility for both healthcare improvement and integrity with data processing and collection. Aim to have material communicated in a ‘common language’ and part of a therapeutic strategy.
Capture and share local knowledge between clinics on how PROM implementation is going.
Assess/confirm patient accessibility needs to adapt PROMs as needed (i.e., large-print, high contrast versions, providing overlays, different languages).
Inform higher-level leaders (i.e., senior managers of the trust) of the PROM implementation strategy for trust-level buy in.
Involve local organisations as points of support to aid PROM implementation (e.g., Citizens Advice as a point of support to patients who may need help filling in a form, ethnically diverse local organisations). Survey local organisations to see if they would be willing to be involved and if they have the knowledge required to support a gender-affirming care PROM implementation effort.
Involve local patient advisory groups as points of contact to provide support on PROM implementation. This could include tailoring PROM implementation strategies to your clinic in partnership with service users.
Organize staff meetings aimed at identifying a PROM to implement which is not burdensome (i.e., not too lengthy or complex to score, has a computerised adaptive test option) and formalising the PROM implementation plan. Also, organise a meeting with service users to identify measures which would be acceptable to them.
Develop a formal implementation blueprint for the clinic on PROM implementation.
Provide ongoing engagement with patients to facilitate dialogue about how PROM responses are used to improve care.
Develop academic partnerships to help facilitate PROM implementation and interpretation when using PROMs for research.
Have PROM responses linked to the electronic medical record so they are accessible online. Ensure patient control over data access and where patients consent.
Develop a process to handle critical PROM responses and feedback. Have details of this process available for patients.