TABLE 3.

Major themes.

Enrollment and research participation		Management (security and storage)		Data sharing (From Inv. 1 to Inv. 2)
Investigator	Participant	Investigator	Participant	Investigator	Participant
Participant Decision Making	Study Description	Institution	Institution	Data Sharing Process	Data Sharing Process
Disclosure Process	Enrollment	Data Security	Data Security	Researcher Assumptions	Legal Protections
	Unrelated Discrimination	De‐Identification Process	Identification	Discrimination	Recommendations
	Participant Trust	Identifiable Data		Importance of Data Sharing	Data Sharing Perspectives
	Status Decision Making	Data Collection and Document		Inv. Trust in Legal/Process
	Status Disclosure			Oversight/Governance
	FTD			Researcher Recommendations
	Discrimination			Gate Keeping
	Efforts to Avoid Discrimination