Table 1.

Lymphedema awareness questions among gynecological cancer survivors.

Table 1. Lymphedema awareness

Country

Age

Type of gynecological cancer     Endometrial cancer     Ovarian cancer     Cervical cancer     Vulvar cancer     Other forms

Year of diagnosis

Treatment     Surgery     External beam radiotherapy     Brachytherapy     Chemotherapy

If you had surgery were lymph nodes removed?

If you had lymph nodes removed, do you know how many? (Enter a number)

Do you know what lymphedema is?

Do you know if you have lymphedema?

Were you informed by your doctor about the possibility of lymphedema prior to treatment?

Were you informed about lymphedema by someone other than your doctor? Check all that apply.     Patient group     Another patient     Internet     This questionnaire     Other

Do you know the stages of lymphedema?

Does any of the following applies to you?   I have had lymph nodes removed and/or had radiotherapy but there is no swelling (edema) (stage 0).   There is swelling (edema) present which does not return to original place when pressed down. It goes away with limb elevation or rest (stage 1).   There is swelling (edema) that does not resolve after limb elevation and skin fibrosis (thickening of the skin) develops (stage 2).   There is swelling (oedema) that does not go away. Skin fibrosis is permanent and there are also cysts and ulcers present (stage 3).   None of the above applies (You do not need to continue with the questionnaire).