Table 3.
Demographics health data | Data collected included year of birth, sex, marital status, highest achieved educational level/degree, employment status, annual household income (from 1 = Under $10,000 to 8 = $100,000 and higher), number of people in the household, insurance or health coverage (Yes/No for each of Indian Health Service, Medicare/Medicaid, and Private Insurance), participation in food assistance programs (Yes/No), number of miles traveled to primary healthcare, number of doctor visits in the past four months, and self-reported CI conditions. |
Measures [Cronbach’s a] SF-12 [0.72–0.89] [25] 12 questions regarding function in physical and mental health domains. The normed score range is from 0 to 100 with 50 representing an average score and lower scores indicating poorer health and increased physical and mental limitations. |
Changes Activities deleted were bowling and playing golf and activities that were added were carrying a small child, walking for exercise, or round dancing/push dancing (Native American traditional dances). |
PHQ-9 [0.86–0.89] [37] 9 questions asked participants to respond to statements pertaining to the frequency of depression symptoms in the preceding two weeks. The score range for the instrument is from 0 to 27, with higher scores indicating higher levels of depression symptoms. |
None |
Patient Activation Measure (PAM) [0.87] [79] 13 questions assess participant beliefs, perceptions, knowledge, and confidence regarding management of their health condition. |
Minor changes were made to 11 of 13 questions to assist with understandability. For example, the question “I have been able to maintain the lifestyle changes for my health that I have made.” was changed to “I have been able to maintain (keep up with) lifestyle changes, like eating right or exercising.” |
PROMIS Measures [Cronbach’s a] | |
Satisfaction with Social Roles and Activities [α = 0.976] ([33]; [35]) Self-Efficacy for Managing Symptoms [α = 0.968] [32] Emotional Support [α = 0.976] [34] Positive Affect and Well-Being [α = 0.965] [74] Physical Function [α = 0.947] ([18]; [32]) Self-Efficacy for Managing Emotions [α = 0.961] ([32]; [53]) Self-Efficacy for Managing Social Interactions [α = 0.905] [32] |
Physical Activity Tests | Changes | |
---|---|---|
Timed Up and Go (TUG) [64]. | Participants are timed as they rise from a seated position in a chair, walk for 3 m, turn around and return to a seated position. Participants performed the TUG twice and were scored with the mean time. | Due to an error in communication between a consultant who assisted with this measure and the research team, the distance that individuals walked during this test was modified from 3 m to 10 m, therefore prior validation data may not apply. |
Modified Balance Error Scoring System (mBESS) ([7]; [49]; | Participants stood with hands on hips and eyes closed, balancing for 20 s in 3 standing positions: a double-leg stance, a single-leg stance, and tandem stance. Test observers counted up to 10 errors per stance, including opening eyes, taking hands off hips, stepping, putting a hand out to a chair or wall, or making other large corrections, which led to a stance score ranging from 0 to 10 with a maximum total of 30. Participants who could not complete a position for balance reasons, were given a score of 10. | Changes made for our data collection include testing single-leg stance with the dominant foot, as opposed to non-dominant foot as instructed by mBESS, and allowing participants to determine lead foot during the tandem stance; therefore, prior validation data may not apply. |
6 Minute Walk Test ([8];[52];[71]) | Staff measured the cumulative distance participants walked at a comfortable pace along a 100-ft tape measure for six minutes. | The distance participants walked before turning around was adapted to the unique space and weather conditions of the various data collection sites. |