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. Author manuscript; available in PMC: 2024 Apr 30.
Published in final edited form as: Contemp Clin Trials. 2022 Jun 18;119:106835. doi: 10.1016/j.cct.2022.106835

Table 3.

Data Instruments.

Demographics health data Data collected included year of birth, sex, marital status, highest achieved educational level/degree, employment status, annual household income (from 1 = Under $10,000 to 8 = $100,000 and higher), number of people in the household, insurance or health coverage (Yes/No for each of Indian Health Service, Medicare/Medicaid, and Private Insurance), participation in food assistance programs (Yes/No), number of miles traveled to primary healthcare, number of doctor visits in the past four months, and self-reported CI conditions.
Measures [Cronbach’s a]
SF-12 [0.72–0.89] [25]
12 questions regarding function in physical and mental health domains. The normed score range is from 0 to 100 with 50 representing an average score and lower scores indicating poorer health and increased physical and mental limitations.
Changes
Activities deleted were bowling and playing golf and activities that were added were carrying a small child, walking for exercise, or round dancing/push dancing (Native American traditional dances).
PHQ-9 [0.86–0.89] [37]
9 questions asked participants to respond to statements pertaining to the frequency of depression symptoms in the preceding two weeks. The score range for the instrument is from 0 to 27, with higher scores indicating higher levels of depression symptoms.
None
Patient Activation Measure (PAM) [0.87] [79]
13 questions assess participant beliefs, perceptions, knowledge, and confidence regarding management of their health condition.
Minor changes were made to 11 of 13 questions to assist with understandability. For example, the question “I have been able to maintain the lifestyle changes for my health that I have made.” was changed to “I have been able to maintain (keep up with) lifestyle changes, like eating right or exercising.”
PROMIS Measures [Cronbach’s a]
Satisfaction with Social Roles and Activities [α = 0.976] ([33]; [35])
Self-Efficacy for Managing Symptoms [α = 0.968] [32]
Emotional Support [α = 0.976] [34]
Positive Affect and Well-Being [α = 0.965] [74]
Physical Function [α = 0.947] ([18]; [32])
Self-Efficacy for Managing Emotions [α = 0.961] ([32]; [53])
Self-Efficacy for Managing Social Interactions [α = 0.905] [32]
Physical Activity Tests Changes
Timed Up and Go (TUG) [64]. Participants are timed as they rise from a seated position in a chair, walk for 3 m, turn around and return to a seated position. Participants performed the TUG twice and were scored with the mean time. Due to an error in communication between a consultant who assisted with this measure and the research team, the distance that individuals walked during this test was modified from 3 m to 10 m, therefore prior validation data may not apply.
Modified Balance Error Scoring System (mBESS) ([7]; [49]; Participants stood with hands on hips and eyes closed, balancing for 20 s in 3 standing positions: a double-leg stance, a single-leg stance, and tandem stance. Test observers counted up to 10 errors per stance, including opening eyes, taking hands off hips, stepping, putting a hand out to a chair or wall, or making other large corrections, which led to a stance score ranging from 0 to 10 with a maximum total of 30. Participants who could not complete a position for balance reasons, were given a score of 10. Changes made for our data collection include testing single-leg stance with the dominant foot, as opposed to non-dominant foot as instructed by mBESS, and allowing participants to determine lead foot during the tandem stance; therefore, prior validation data may not apply.
6 Minute Walk Test ([8];[52];[71]) Staff measured the cumulative distance participants walked at a comfortable pace along a 100-ft tape measure for six minutes. The distance participants walked before turning around was adapted to the unique space and weather conditions of the various data collection sites.