Table 3.

Members of Working Group 5.

Member	Community Role	Affiliation
Judith R. Baker, DrPH, MHSA (cochair)	Public Health researcher; US Hemophilia Treatment Center Network Regional Administrator	Center for Inherited Blood Disorders; Western States Regional Hemophilia Network, Orange, California
Tyler W. Buckner, MD, MSc (cochair)	Hematologist	Department of Medicine, Hematology; Hemophilia and Thrombosis Center, University of Colorado School of Medicine, Aurora, Colorado
Vanessa R. Byams, DrPH, MPH (cochair)	Health scientist; Federal agency partner	Division of Blood Disorders, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, Atlanta, Georgia
Cindy Bailey PT, DPT, OCS, SCS, ATC	Physical therapist	Los Angeles Orthopedic Hemophilia Treatment Center, Los Angeles, California
Nathan T. Connell, MD, MPH	Hematologist	Hematology, Boston Hemophilia Center, Brigham and Women’s Hospital; Harvard Medical School, Boston, Massachusetts
Melissa S. Creary, PhD, MPH	LEE; Senior Director, Office of Public Health Initiatives, ATHN;	American Thrombosis and Hemostasis Network (ATHN); University of Michigan School of Public Health, Ann
	Health, equity, inclusion, and diversity researcher	Arbor, Michigan
Randall G. Curtis, MBA	LEE; Researcher	Hematology Utilization Group Study (HUGS), University of Southern California, Los Angeles, California; Patient Reported Outcomes, Burdens and Experiences (PROBE), Washington, DC
Alexis Dinno, ScD, MPH, MEM	Social epidemiology and gender minority representation researcher	Oregon Health & Science University-Portland State University School of Public Health, Portland, Oregon
Christine J. Guelcher, RN-BC, MS, PPCNP-BC	Advanced practice provider	Children’s National Hospital, Washington, DC
Michelle Kim, Esq.	LEE; NHF Chapter Executive Director	Hemophilia Foundation of Southern California, Pasadena, California
Roshni Kulkarni, MD	Pediatric Hematologist	Center for Bleeding and Clotting Disorders, College of Human Medicine, Michigan State University, East Lansing, Michigan
Susan Lattimore, RN, GCPH	Regional HTC Director, Nurse Researcher	Mountain States Regional Hemophilia Network; Oregon Health & Science University, Portland, Oregon
Kathryn M. McLaughlin†, MPH	Federal agency partner	Division of Services for Children with Special Health Needs, Maternal and Child Health Bureau, Health Resources and Services Administration, Washington, DC
Keri L. Norris, PhD, JM, MPH, MCHES	NHF Vice President of Health Equity, Diversity, and Inclusion	NHF, New York, NY
Lucy Ramirez, MSW, LCSW	Social worker	Rush Hemophilia and Thrombophilia Treatment Center, Rush University Medical Center, Chicago, Illinois
Mark W. Skinner, JD	LEE; researcher	Institute for Policy Advancement, Washington, DC; Health Sciences, McMaster University, Hamilton, Ontario, Canada
Susan Symington, MPAS, PA-C, DFAAPA	Industry	Genentech, Phoenix, Arizona
Patricia Tobase, PT, DPT, OCS	Physical therapist	University of California San Francisco Hemophilia Treatment Center, San Francisco, California
Esmeralda Vázquez‡	LEE	NHF, Chicago, Illinois
Beth B. Warren, MD, MSCS	Pediatric Hematologist	Department of Pediatrics, Hemophilia and Thrombosis Center, University of Colorado Anschutz Medical Campus, Aurora, Colorado
Emily Wheat, PhD	Psychologist	Department of Pediatrics, Hematology and Oncology, Hemophilia and Thrombosis Center, University of Colorado School of Medicine, Aurora, Colorado

^†NHF SOSRS Advisory Committee

^‡NHF SOSRS Steering Committee

ATHN: American Thrombosis and Hemostasis Network, LEE: lived experience expert, NHF: National Hemophilia Foundation, SOSRS: State of the Science Research Summit, US: United States