Table 4.
Summary of expert presentations and discussion themes for each WG5 subject work block.
| Health services research | |
| Speaker | Michael Nichol, PhD |
| Affiliation | Professor, Health PolicyUniversity of Southern California, Sol Price School of Public PolicyPI, Hematology Utilization Group Studies www.hugsresearch.net |
| Fields of expertise | Health policy, health care cost and resource utilization, health state preference assessment, cost effectiveness |
| Presentation focus | Health care access, costs, quality, outcomes as they pertain to patients, providers, institutions, insurers, policies |
| Discussion prompts | Access, cost effectiveness, outcomes, health care delivery models, global perspectives, pain, mental and behavioral health, etc. |
| # Questions generated | Approx. 85 |
| Diversity, equity, and inclusion | |
| Speaker | Melissa Crearv, PhD, MPH |
| Affiliation | Senior Director, Office of Public Health InitiativesAmerican Thrombosis and Hemostasis Network Assistant Professor, University of Michigan School of Public Health |
| Fields of expertise Presentation focus | Intersection of public health, science and technology studies, medical anthropology Centering DEI, health equity, and antiracism in BDs research |
| Discussion prompts | Application of antiracist lens: How do racism, sexism, phobias operate in data collection, clinical care, community engagement, policies/ systems? What must be challenged? What structural forces contribute to inequities? |
| # Questions generated | 13 |
| Implementation science | |
| Speaker | Brian Mittman, PhD |
| Affiliation | Research Scientist, Kaiser Permanente Division of Health Services Research and Implementation Science U.S. Department of Veterans Affairs, University of Southern California, and the University of California, Los Angeles |
| Fields of expertise Presentation focus | Implementation science, innovative approaches to health care delivery and improvement Applying implementation science in BDs research |
| Discussion prompts | How to apply IS methods to HSR? How does IS intersect with DEI research? How to apply IS to other WG topics and NHF SOSRS patient input? |
| # Questions generated | 27 |
BD: bleeding disorder, DEI: diversity, equity, and inclusion, HSR: health services research, IS: implementation science, NHF: National Hemophilia Foundation, PI: principal investigator, SOSRS: State of the Science Research Summit, WG: working group