Table 5.
User feedback survey results (n = 200)
| Topics, content, and videos | Percent of Sample (%n) | ||
| How difficult have each of these things been for you in the past year?a | Very difficult | Somewhat difficult | Not at all difficult |
| Finding a relationship | 37.5 | 34.5 | 28 |
| Feeling isolated or alone | 34.5 | 35 | 30.5 |
| Telling friends or family about your HIV status | 34.5 | 41.5 | 24 |
| Telling partners about your HIV status | 30 | 33 | 37 |
| Feeling sad or depressed | 29.5 | 44 | 26.5 |
| Experiencing HIV stigma/discrimination from family, friends, or society | 27 | 27.5 | 45.5 |
| Taking your HIV medications (because you forget) | 19.5 | 38 | 42.5 |
| Accessing resources | 17 | 37.5 | 45.5 |
| Talking to your doctor about HIV-related issues | 12 | 33.5 | 54.5 |
| Taking your HIV medications (because you don’t feel like taking them) | 10.5 | 31 | 58.5 |
| Making it to appointments for HIV care | 10 | 29.5 | 60.5 |
| Refilling your prescriptions | 9 | 34.5 | 56.5 |
| How important would each of these topics be to include in the app/mobile website?a | Very important | Somewhat important | Not at all important |
| Mental Health (e.g., getting support, dealing with isolation, depression, managing stress) | 92 | 8 | 0 |
| Just Diagnosed (e.g., dealing with a new diagnosis, first steps, starting treatment, HIV 101) | 91 | 8 | 1 |
| Staying Healthy (e.g., medications, side effects, working with your doctor, nutrition/exercise, substance use, STIs) | 89 | 10.5 | 0.5 |
| Sex and Relationships (e.g., finding love, disclosing to partners, HIV negative partners, hookup apps) | 86.5 | 13 | 0.5 |
| Your Best Life (e.g., reaching your goals, staying active, expressing yourself, community service) | 76.5 | 17 | 6.5 |
| Telling Others (family, friends, partners, others) | 74.5 | 21.5 | 4 |
| How important would it be to have each of these types of content?a | Very important | Somewhat important | Not at all important |
| News about HIV (new treatments, efforts to find a cure) | 78.5 | 19.5 | 2 |
| Frequently asked questions | 78.5 | 20.5 | 1 |
| Articles | 52 | 44.5 | 3.5 |
| Affirmations and motivations (e.g., a daily affirmation) | 47.5 | 32.5 | 20 |
| When it comes to the videos of people living with HIV on the app, who would you want to see included? | Percent | ||
| Anyone living with HIV, of any age, gender, or race/ethnicity | 51.5 | –- | –- |
| Young men living with HIV, of any race/ethnicity | 22.5 | –- | –- |
| Young Black/African-American men living with HIV | 12.5 | –- | –- |
| Young men of color living with HIV | 7.5 | –- | –- |
| Men of color living with HIV, of any age | 4.5 | –- | –- |
| Other | 1.5 | –- | –- |
| Tools, resources, and other features | Percent of Sample (%n) | ||
| Which of these tools would you use?a | Definitely would use | Might use | Definitely would not use |
| CD4 and viral load tracker (to chart lab results over time) | 81.5 | 16 | 2.5 |
| Your medications (tracks your medications and dosages) | 75 | 22 | 3 |
| Appointment reminder (would link to your smartphone calendar) | 62.5 | 29 | 8.5 |
| Medication reminder (a discreet reminder that can be customized for your needs) | 61.5 | 29 | 9.5 |
| Pharmacy pick-up reminder (would link to your smartphone calendar) | 56.5 | 32 | 11.5 |
| Custom tracker (allows you to create your own tracker) | 46 | 43.5 | 10.5 |
| Provider messaging (privately communicate with your doctor or case manager if you have one) | 46.4 | 40 | 13.6 |
| Notepad (for recording questions for your provider, symptoms, side effects, and more) | 41 | 46.5 | 12.5 |
| Which of these community features would you use?a | Definitely would use | Might use | Definitely would not use |
| Ask question in a Q & A forum/message board | 66 | 30.5 | 3.5 |
| Join a virtual support group on the app | 64.5 | 32.5 | 3 |
| Direct message (DM) other members | 63.5 | 30.5 | 6 |
| Join a chat with an expert (discussing a topic like relationships, telling family members, or side effects) | 62 | 36 | 2 |
| How helpful do you think it would be to include each of these resources?a | Very helpful | Somewhat helpful | Not at all helpful |
| Mental health and support (including support groups) | 80 | 19 | 1 |
| Health care | 77.5 | 20.5 | 2 |
| Job and career | 76.5 | 20.5 | 3 |
| Help quitting alcohol, tobacco, or drugs | 69.5 | 26 | 4.5 |
| Housing | 64 | 22 | 14 |
| Hotlines | 63 | 29 | 8 |
| Food | 61.5 | 23 | 15.5 |
| How helpful would it be to have a community on the app of other young men living with HIV to communicate with and to share experiences with? | Very helpful | Somewhat helpful | Not at all helpful |
| 77 | 23 | 0 | |
| How useful would it be to have a feature with trained mentors who can answer question on the app/website? | Very useful | Somewhat useful | Not at all useful |
| 72 | 27.5 | 0.5 | |
| Which of these ideas would make the app most engaging to you and keep you coming back?a | Very engaging | Somewhat engaging | Not at all engaging |
| Interacting with other people living with HIV in the app community | 83.5 | 14.5 | 2 |
| Regularly adding new videos of people living with HIV telling their stories | 73.5 | 23.5 | 3 |
| Commenting on videos, content, and posts | 73 | 24 | 3 |
| Resources available through the app | 73 | 25.5 | 1.5 |
| Regularly adding new videos of experts talking about different topics related to HIV | 72.5 | 27 | 0.5 |
| Tools available through the app | 65.5 | 31.5 | 3 |
| Being able to customize your experience on the app | 64 | 23 | 13 |
| Notifications of new content and tools | 59.5 | 26 | 14.5 |
| Hotlines | 54 | 32 | 14 |
| Daily affirmations | 51 | 31.5 | 17.5 |
| Quizzes | 41 | 31 | 28 |
| Games | 40.5 | 30 | 29.5 |
| For you personally, how important would it be for the app/mobile website to be very confidential? | Very important | Somewhat important | Not at all important |
| 64.5 | 23 | 12.5 | |
| Usefulness and appeal | Percent of Sample (%n) | ||
| Level of agreement with each statement | Strongly Agree or Agree | Neutral | Disagree or Strongly Disagree |
| This program seems like it would be helpful for young men living with HIV | 75 / 20 | 3.5 | 1 / 0.5 |
| I would be able to use this program | 65.5 / 29 | 4 | 1 / 0.5 |
| This program is appealing to me | 52 / 39.5 | 6 | 1.5 / 1 |
| How helpful do you think this app would be … | Very helpful | Somewhat helpful | Not at all helpful |
| For people who were recently diagnosed with HIV? | 90.5 | 8.5 | 1 |
| For people who have had HIV for 2 years or longer? | 76 | 22.5 | 1.5 |
| We are considering making the program an app, a mobile website, or both. What would you most likely use? | Percent | ||
| Both | 53.5 | –- | –- |
| App | 41.5 | –- | –- |
| Mobile website | 4 | –- | –- |
| Other | 1 | –- | –- |
| About how often do you think you would use the program app or mobile website? | Percent | ||
| Several times a day | 21 | –- | –- |
| About once a day | 14.5 | –- | –- |
| About 3–4 times per week | 22.5 | –- | –- |
| About 1–2 times per week | 24.5 | –- | –- |
| About once a month | 4 | –- | –- |
| About 2- 3 times per month | 13.5 | –- | –- |
| Never | 0 | –- | –- |
aSelect all that apply/mutually inclusive