Table 1. Summary of included studies.
Author, year, citation | Study type | Population | Intervention/Method | Relevant findings |
---|---|---|---|---|
Verosky et al, 2022 [23] |
Cross-sectional | Mammography patients | Questionnaire | Patients believe the following would be helpful: • A brief paragraph summarizing important results in nonmedical language • An electronic glossary embedded within the report allowing patients to receive additional information about the terms used • An electronic pamphlet with specific information regarding the results |
Austin et al, 2021 [24] |
Qualitative | Patients with breast cancer, colorectal cancer or polypectomy | Focus groups |
Patients believe that a standard report (SR): • Contains no explanation of the results • Impacts the ability of patients to communicate effectively with providers • Hinders the ability of patients to participate in decision making Patients stated that an ideal PCPR should: • Contain simple language • Highlight information pertinent to decision making • Contain recommended next steps/a roadmap for the future |
Nayak et al, 2020 [25] |
RCT | Patients with prostate cancer | PCPR | PCPR: • Viewed more favorably than SR • Patients found the language easier to understand • Majority of patients would prefer to receive a PCPR after every biopsy • Facilitates better provider communications • Patients had improved ability to identify and recall important elements of their report (such as Gleason score) |
Mossanen et al, 2016 [26] |
RCT | Patients undergoing bladder biopsy | PCPR | PCPR: • Patients found the language easier to understand • Majority of patients would prefer to receive a PCPR after every biopsy • Patients had improved ability to identify and recall important elements of their report (such as cancer stage) |
Stuckey et al, 2015 [27] |
Qualitative | Parents of pediatric patients undergoing whole genome sequencing | Focus groups | A standard report: • Leaves the patient with uncertainty • Provides no information about the next steps PCPR: • Contains language that is easier to understand • Helps facilitate better communication with both physicians and family members • Should contain recommended next steps/what to expect in the future |