(1) Please take a minute to remember when you were told your child had epilepsy. Can you describe this experience to me?
(a) When you were hearing this information for the first time, what did you find helpful?
(b) During this period, what did you not find was supportive or helpful?
(c) Looking back, what would have been the ideal circumstances under which to learn that you had epilepsy?
(2) When you first learned about epilepsy, what were your main concerns or worries?
(3) Explain how you heard about the ketogenic diet for the first time.
(4) Would you have preferred to have been informed about the ketogenic diet differently? Please explain.
(5) Please explain why you started your child on KD, and your expectations from this form of treatment initially.
(6) Please explain your initial concerns about the KD therapy before initiation.
(7) How would you describe success in KD therapy?
(8) How did the implementation of the ketogenic diet affect your child?
(9) How did the implementation of the ketogenic diet affect you? (
(10) Could you explain your (and your child's) experience with the ketogenic diet therapy team and their recommendations?
(11) From your experience, what were the benefits and drawbacks of ketogenic diet in the treatment of epilepsy?
(12) In your opinion, once the physician discusses the option of ketogenic diet therapy with a patient, what additional follow up measures should the physician and the team take to support the patient and family?
(13) What hospital support systems would you suggest once the patient is initiated on diet?
(14) In your opinion, what is the role of community epilepsy agencies in supporting patients on ketogenic diet?
