Table 1.

Information system sources in each health system scenario and center.

Accessible data systems		Scenario 1			Scenario 2			Scenario 3
		Lithuania	Austria	Italy		Spain	Belgium		Germany
National EHRa		Yes	Yes	Yes		Yes	Yes		No
	Possibility to download data	Yes	Yes	Yes		Yes	Yes		No
	Possibility to enter data	Yes	mb	Yes		No	Yes		No
	Possibility to update data	Yes	Yes	Yes		No	No		No
	Integrated transparently	No	m	Yes		No	No		No
	APIsc available to integrate	Yes	Yes	Yes		No	Yes		No
Regional EHR		?d	m	~e		Yes	No		No
	Possibility to download data	?	m	Yes		No	No		No
	Possibility to enter data	?	m	Yes		Yes	No		No
	Possibility to update data	?	m	Yes		Yes	No		No
	Integrated transparently	?	m	?		~	No		No
	APIs available to integrate	?	m	Yes		~	No		No
Cancer registry		Yes	Yes	Yes		Yes	Yes		Yes
	Possibility to download data	No	Yes	Yes		?	Yes		No
	Possibility to enter data	No	Yes	Yes		Yes	Yes		Yes
	Possibility to update data	No	Yes	Yes		Yes	No		Yes
	Integrated transparently	?	m	?		Yes	No		?
	APIs available to integrate	No	Yes	?		No	Yes		No
Hospital EMRf		Yes	m	Yes		Yes	Yes		Yes
	Possibility to download data	Yes	m	Yes		Yes	Yes		No
	Possibility to enter data	Yes	m	Yes		Yes	Yes		?
	Possibility to update data	Yes	m	Yes		Yes	Yes		?
	Integrated transparently	Yes	m	Yes		Yes	Yes		?
	APIs available to integrate	Yes	m	Yes		Yes	No		?
Patient records at LTFUg care center		Yes	m	Yes		Yes	Yes		?
	Possibility to download data	Yes	m	Yes		Yes	Yes		?
	Possibility to enter data	Yes	m	Yes		Yes	Yes		?
	Possibility to update data	Yes	m	Yes		Yes	Yes		?
	Integrated transparently	m	m	Yes		No	Yes		?
	APIs available to integrate	m	m	Yes		No	No		?
Patient records at other outpatient center		Yes	m	No		No	Yes		?
	Possibility to download data	Yes	m	No		No	Yes		?
	Possibility to enter data	Yes	m	No		No	No		?
	Possibility to update data	Yes	m	No		No	No		?
	Integrated transparently	Yes	m	No		No	Yes		?
	APIs available to integrate	Yes	m	No		No	No		?
Appointment scheduling system		Yes	Yes	Yes		Yes	Yes		Yes
	Possibility to download data	Yes	m	Yes		Yes	Yes		?
	Possibility to enter data	Yes	Yes	Yes		Yes	Yes		?
	Possibility to update data	Yes	Yes	Yes		Yes	Yes		?
	Integrated transparently	?	m	Yes		Yes	Yes		?
	APIs available to integrate	Yes	m	Yes		Yes	No		?
Pharmacy		Yes	m	Yes		Yes	Yes		Yes
	Possibility to download data	?	m	Yes		Yes	Yes		?
	Possibility to enter data	?	m	Yes		Yes	Yes		?
	Possibility to update data	?	m	Yes		Yes	Yes		?
	Integrated transparently	Yes	m	Yes		Yes	Yes		?
	APIs available to integrate	?	m	Yes		Yes	Yes		?
Laboratories		Yes	Yes	Yes		Yes	Yes		Yes
	Possibility to download data	Yes	Yes	Yes		Yes	Yes		?
	Possibility to enter data	No	No	Yes		Yes	Yes		?
	Possibility to update data	No	No	Yes		Yes	Yes		?
	Integrated transparently	?	m	Yes		Yes	Yes		?
	APIs available to integrate	?	m	Yes		Yes	Yes		?
Radiology		Yes	Yes	Yes		Yes	Yes		?
	Possibility to download data	Yes	Yes	Yes		Yes	Yes		?
	Possibility to enter data	Yes	No	Yes		Yes	Yes		?
	Possibility to update data	Yes	No	Yes		Yes	Yes		?
	Integrated transparently	?	m	Yes		Yes	Yes		?
	APIs available to integrate	?	m	Yes		Yes	Yes		?
Clinical trial systems		Yes	m	No		No	Yes		Yes
	Possibility to download data	Yes	m	No		No	No		?
	Possibility to enter data	Yes	m	No		No	No		?
	Possibility to update data	Yes	m	No		No	No		?
	Integrated transparently	Yes	m	No		No	Yes		?
	APIs available to integrate	Yes	m	No		No	No		?
Primary health care information system		Yes	Yes	No		Yes	No		Yes
	Possibility to download data	m	Yes	No		Yes	No		No
	Possibility to enter data	m	Yes	No		Yes	No		?
	Possibility to update data	m	Yes	No		Yes	No		?
	Integrated transparently	m	m	No		Yes	No		?
	APIs available to integrate	m	m	No		Yes	No		?

^aEHR: electronic health record.

^bm: Answers missing.

^cAPI: application programming interface.

^d?: Respondents did not know.

^e~: Unclear, for example, 1 × “yes” and 1 × “no.”

^fEMR: electronic medical record.

^gLTFU: long-term follow-up.