Table 2.
Page | Content feedback | Changes made |
1. Introduction | Want more information on this page | Short summary was added to introduction |
3. What is IMAGINE-PDa | Not sure how the website is relevant to PDb | Clarified study relevance to PD |
4. Summary | Wording is too technical | Simplified vocabulary |
5. What is PD | Wording is too technical | Simplified vocabulary |
6. How is PD diagnosed | Want more information on nonmotor symptoms | Information on nonmotor symptoms included |
7. What causes PD | Too much information on page | Information was cut down and simplified |
8. How is PD treated | Want less information on drugs, more information on other treatments | Drug section shortened and added other PD treatments |
9. What is genetics | Too much information on page | Information was shortened and simplified |
10. Basics of genetics | Too much information on page and too technical | Information was shortened and simplified |
11. What is GTc | Wording is too technical and not sure how information is related to PD | Simplified vocabulary, clarified relevance |
12.5. Reasons for GT | Page should be included as a separate page | Separate page was made for information |
13. Benefits and risks | Make it more related to PD and more information on benefits | Clarified PD relevance |
14. GT process | Too much detail | Simplified a shortened page |
15. How genetics affects PD | Too much information | Shortened page |
16. GBAd and PD | Information too technical and want to know why this gene is being studied | Simplified vocabulary and clarified the relevance of GBA |
17. LRRK2e and PD | Information too technical and want to know why this gene is being studied | Simplified vocabulary and clarified the relevance of LRRK2 |
18. Other rare genes for PD | Language seems too technical, why only GBA and LRRK2 being tested | Simplified language, provides more resources for additional information on other genes |
19. How do I get results | Language seems too technical, want more information | Clarified next steps and reviewed previously introduced topics to clarify information |
20. VUSf and unexpected results | Wording too technical | Simplified language |
21. Implications and limitations | Confused about previously introduced topics | Added information to clarify |
aIMAGINE-PD: Interactive Multimedia Approach to Genetic Counseling to Inform and Educate in Parkinson’s Disease.
bPD: Parkinson disease.
cGT: genetic testing.
dGBA: glucocerebrosidase.
eLRRK2: leucine-rich repeat kinase 2.
fVUS: variant of uncertain significance.