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. 2023 Aug 30;4:e45370. doi: 10.2196/45370

Table 2.

Summary of content changes made in response to user testing.

Page Content feedback Changes made
1. Introduction Want more information on this page Short summary was added to introduction
3. What is IMAGINE-PDa Not sure how the website is relevant to PDb Clarified study relevance to PD
4. Summary Wording is too technical Simplified vocabulary
5. What is PD Wording is too technical Simplified vocabulary
6. How is PD diagnosed Want more information on nonmotor symptoms Information on nonmotor symptoms included
7. What causes PD Too much information on page Information was cut down and simplified
8. How is PD treated Want less information on drugs, more information on other treatments Drug section shortened and added other PD treatments
9. What is genetics Too much information on page Information was shortened and simplified
10. Basics of genetics Too much information on page and too technical Information was shortened and simplified
11. What is GTc Wording is too technical and not sure how information is related to PD Simplified vocabulary, clarified relevance
12.5. Reasons for GT Page should be included as a separate page Separate page was made for information
13. Benefits and risks Make it more related to PD and more information on benefits Clarified PD relevance
14. GT process Too much detail Simplified a shortened page
15. How genetics affects PD Too much information Shortened page
16. GBAd and PD Information too technical and want to know why this gene is being studied Simplified vocabulary and clarified the relevance of GBA
17. LRRK2e and PD Information too technical and want to know why this gene is being studied Simplified vocabulary and clarified the relevance of LRRK2
18. Other rare genes for PD Language seems too technical, why only GBA and LRRK2 being tested Simplified language, provides more resources for additional information on other genes
19. How do I get results Language seems too technical, want more information Clarified next steps and reviewed previously introduced topics to clarify information
20. VUSf and unexpected results Wording too technical Simplified language
21. Implications and limitations Confused about previously introduced topics Added information to clarify

aIMAGINE-PD: Interactive Multimedia Approach to Genetic Counseling to Inform and Educate in Parkinson’s Disease.

bPD: Parkinson disease.

cGT: genetic testing.

dGBA: glucocerebrosidase.

eLRRK2: leucine-rich repeat kinase 2.

fVUS: variant of uncertain significance.