TABLE 1.

Participant characteristics.

Participant	Country	Age	Civil status	Occupational level	Level of education	Number of people at home	Time from onset of symptoms to diagnosis (years)	Time living with the disease (years)
1. Steven	United States	57	Married or in couple	Active worker	4-year college	Between two and four	15–20 years	15–20 year
2. Don	United States	51	Married or in couple	Active worker	Graduate or doctoral degree	Between two and four	2 years	7 years
3. Andrew	United States	57	Married or in couple	Active worker	Graduate or doctoral degree	Between two and four	8 years	30 years
4. Matthew	United States	50	Single	Permanent disability	High School	One	1	4
5. Oliver	United States	63	Married or in couple	Permanent disability	High School	Between two and four	1996 (22 years)	22 years
6. Ryan	United States	60	Married or in couple	Temporary disability	High School	Between two and four	2 years	June 2018
7. Henry	United States	53	Married or in couple	Active worker	4-year college	Between two and four	1.5 years	2 years
1. Daniel	Spain	59	Divorced or separated	Unemployed	High School	One	3	20
2. Jack	Spain	30	Divorced or separated	Active with temporary incapacity for work	High School	Between two and four	3	4
3. Samuel	Spain	46	Married or in couple	Retired or pensioner	4-year college	Between two and four	2	10
4. Alexander	Spain	45	Married or in couple	Active with temporary incapacity for work	Elementary school	Between two and four	4	5
5. Adam	Spain	60	Married or in couple	Unemployed	High School	Between two and four	22	40
6. James	Spain	55	Divorced or separated	Retired or pensioner	High School	One	6	10
7. Jordan	Spain	35	Single	Unemployed	High School	Between two and four	17	20
8. Jonathan	Spain	55	Divorced or separated	Permanent disability	4-year college	Between two and four	2	9
9. Julian	Spain	50	Married or in couple	Permanent disability	High School	Between two and four	2	12
10. Victor	Spain	53	Widower	Retired or pensioner	High School	Between two and four	13	15