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. 2024 May 20;12:1374805. doi: 10.3389/fpubh.2024.1374805

Table 1.

Participants’ characteristics (N = 570).

Participants’ characteristics (N = 570) n (%) mean (±SD)
Sociodemographic variables
Sex (n = 557)
Male
Female		 173 (31.1)
384 (68.9)
Age, years (n = 561)
≤35
>35		 33.3 (±10.7)
351 (62.6)
210 (37.4)
Born in France (n = 566) 305 (53.9)
Housing (n = 566)
By own means
With parents		 381 (67.3)
185 (32.7)
Living in couple (n = 564) 200 (35.5)
Having child(ren) (n = 568) 216 (38.0)
Child(ren) with SCD (n = 210) 37 (17.6)
Secondary or high school completed (n = 567) 484 (85.2)
Professional active (n = 547) 290 (53.0)
Self-perceived financial situation (n = 383)

  • Unstable

  • Moderate

  • Stable

 134 (35.0)
101 (26.4)
148 (38.6)
Relatives’ support (n = 570) 531 (93.2)
Clinical and therapeutic variables
Hospitalization for VOC or ACS * (n = 566) 276 (48.8)
Admission in intensive care unit* (n = 561) 114 (20.3)
Surgery, prosthesis, or bone marrow transplant (n = 559) 216 (38.6)
Blood transfusion* (n = 565) 201 (35.6)
SCD-related treatment** (n = 551) 431 (78.2)
Follow-up for other disease (n = 567) 112 (19.8)
Psychological follow-up (n = 551) 179 (32.5)
Acute complications*** (n = 561) 542 (96.6)

  • Vaso-occlusive crisis (n = 543)

 478 (88.0)

  • Acute chest syndrome (n = 501)

 347 (69.3)

  • Stroke (n = 472)

 44 (9.3)

  • Infectious complications (n = 479)

 266 (55.5)

  • History of femoral osteonecrosis (n = 496)

 149 (30.0)

  • Priapism (n = 480)

 59 (12.3)

  • Auditory or visual complications (n = 509)

 164 (32.2)

  • History of splenic sequestration (n = 485)

 70 (14.4)

  • Acute anemia (n = 465)

 313 (67.3)
Chronic complications**** (n = 478) 363 (75.9)

  • Pulmonary arterial hypertension (n = 458)

 55 (12.0)

  • Cerebral vasculopathy (n = 447)

 45 (10.1)

  • Heart failure (n = 495)

 38 (7.7)

  • Renal failure (n = 482)

 34 (7.1)

  • Retinopathy (n = 475)

 89 (18.7) Participants’ characteristics (N = 570) n (%) mean (±SD)

  • Skin ulcer (n = 505)

 77 (15.2)

  • Severe anemia (n = 468)

 251 (53.6)

VOC, vaso-occlusive crisis; ACS, acute chest syndrome. * in the 12 last months. ** SCD-related treatment included hydroxycarbamide, oxygen therapy, or painkillers. *** Acute complications: Vaso-occlusive crisis (VOC), acute chest syndrome (ACS), cerebrovascular accident, infectious complications (cholecystitis, pyelonephritis, osteomyelitis, osteoarthritis), femoral osteonecrosis, priapism, auditory or visual complications, hepatitis, splenic sequestration, acute anemia. **** Chronic complications: Pulmonary hypertension, cerebral vasculopathy, heart failure, renal insufficiency, retinopathy, skin ulcer, severe anemia.