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Participation process for birth parents. Solid lines represent the expected end-to-end study pathway (offer to result and final surveys), dashed lines represent anticipated study exit pathways. *Participants not able to complete enrolment in English will be supported by a genetic counsellor and an interpreter. HCP, healthcare professional; gNBS, genomic NBS; NBS, newborn bloodspot screening; REDCap, Research Electronic Data Capture; T1–T4, survey time points/identifiers.
