Table 2.

Excerpts From Theme 1: Multiple Caregivers Involved Within a Family-Oriented Latino Household

Sub-theme	Representative quote
1A) Cultural expectations of a family to care for the older individuals	Caregiver_WA_13: …[I]t's not a role that [caregivers] feel like [is] a job. It's part of who we are as a family that we take care of each other. And so people who have dementia or are entering that phase, a lot of it is that our parents are getting older and so there's always a family member or several family members to take on that responsibility to be the caretakers
1B) Advantages of problem-solving as a cohesive family unit	Provider_WA_7: Often, [families are] multigenerational. And they know the person so well, and can really just do a lot of problem-solving and just trying to figure out how can we work within the confines of the disease to make things easier for everybody
1B) Advantages of problem-solving as a cohesive family unit	Provider_WA_7: What's impressive is that, I think, [families] already gone through many of the initial recommendations we would have given on managing behavioral issues. And part of what has enabled them to do that, it's often a pretty close-knit family that comes in
1C) Care coordination within a family	Provider_CA_15: But a lot of the time, even if there were a lot of family members, the family wouldn't be cohesive. I remember one son or grandson just saying that, like, we are not a cohesive family. So, yeah. Coordinating that was always very hard, most of the time, I think, very hard for most of the families
1C) Care coordination within a family	Caregiver_WA_32035: [Other family members] don't really know how to take care of her or something. But they just don't really have the patience to do or something, so. The main issue for me is that they become kind of even less helpful as it has progressed
1C) Care coordination within a family	Caregiver_CA_11: My sister keeps track of most of his appointments nowadays. Whenever he does need to visit a doctor, or whatever, usually my sister will make the appointment right now… Well, she'll make that appointment and sometimes it will be my brother that takes him, depending who's available
1D) Communicating treatment plans to involved caregivers	Caregiver_WA_13: …[O]ur families do not understand the important role that we take as individuals to be responsible, to understand why our [family] member [is] taking all the medication they're taking
1D) Communicating treatment plans to involved caregivers	Caregiver_WA_RG13: Yes. We take turns; As brothers that we are and the United Family, which we have tried to do our best, we took turns. I am with my mother all day, and the one that comes to help us at night takes care of 2 nights, and then another brother of 2 different nights comes, and so on
1E) Use of family conferences to facilitate care coordination	Provider_CA_PRO3: We do this family conference when we make, you know, after they've had whatever necessary testing we need, and we spend an hour going over things with them. And then at the end of that, they get a written sheet with, this is what the diagnosis is, this is what we're recommending. Which they get to take home
1F) Case of a single caregiver within a large household	Caregiver_WA_8: Well, it is not difficult, but it sometimes becomes a little complicated, you know because as I have a husband, I have children, my daughter lives here with her five-year-old girl, I take care of her, she works, then I am the one I do practically all day. I make breakfast, lunch, dinner, that if the snacks, that if I wash the clothes, I do so many things, I go to the store