TABLE 2.

Themes Related to Positive and Negative Perceptions

Theme	Example Quotes	Relevant Tool Component
Positive perceptions and benefits
Value of the tool for decision making	“I know several friends who've gone through end-of-life things, and it's a really confusing place to be… I think this tool would allow them to have a more concrete view of what was really possible, so that they can make better decisions about what they actually wanted to do with time…” (Individual Interview Participant 2—Cancer Survivor) “…seeing this information like this perhaps provides the patient with some sense of agency… especially in our case where the treatment was destroying the quality of life…” (Focus Group 1 Participant—Cancer Survivor)	General comment “Today's 6-month chance of survival”
Value of feeling less alone	“It can feel like you're alone when you're on that journey, and it's kind of nice to know that people have walked that path before you.” (Individual Interview Participant 6—Caregiver)	“Survival of patients like me”
Value of the tool for supporting communication	“With my father-in-law, he has children, and they have spouses, and grandchildren… Instead of bombarding him and my mother-in-law with question after question, if they would've been able to just send that [tool] to us, and have us be able to look at it, and discern the information that we needed to get from it, and then ask questions if we needed to, we wouldn't have felt like we were overwhelming them with the same questions over and over again.” (Individual Interview Participant 6—Caregiver)	General comment
Negative perceptions and wants
Challenging to process	“Honestly, I think I couldn't—I was probably still stuck on “Low.” Low is what stood out and stuck with me.” (Individual Interview Participant 2—Cancer Survivor)	“Today's 6-month chance of survival”
Challenging to understand	“The Kaplan-Meier curve I can understand, someone else who is not a scientist cannot understand…” (Individual Interview Participant 3—Caregiver)	“Observed 6-month population survival”"
Lack of information about what to expect (related to treatment or no treatment, side effects, quality of life, cost of treatment)	“Does survival mean I'm alive medically, or does survival mean I'm playing ball with my kids? So, does survival literally mean I'm medically alive?… I don't know if this is medically possible, but are… there …numbers about people who chose no treatment?” (Individual Interview Participant 1—Cancer Survivor and Caregiver)	“Today's 6-month chance of survival”
Desire for information about the prognosis model	“I would think that you would want to have something… so that they could say, ‘Oh, that number means this,’ or, ‘The reason why that number's on this information is because of this.’” (Individual Interview Participant 6—Caregiver)	Patient information (displayed in left column)
Need for help navigating information gaps	“The medical team is being proactive, knowing what I need. I don't even know what questions to ask. That's one of the terrors of going through all this. Is being afraid of, if you have any questions, ‘Well, I don't know enough to have questions. Walk me through this. You've been through this a gazillion times. I'm going through it once. Walk me through it.’” (Individual Interview Participant 1—Cancer Survivor and Caregiver)	“Recommended Actions”
Contributes to decision fatigue	“…that entire phrase [Choosing Wisely] is something that's just stressing me out. I mean, choosing itself is stressful, but ‘choose wisely’ makes you think that there is a wrong answer and that, like choosing by itself is stressful, that's just super stressful.” (Individual Interview Participant 3—Caregiver)	“Recommended Actions”