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. 2024 May 28;5:1356060. doi: 10.3389/fcdhc.2024.1356060

Table 3.

Comparison of traditional experience-based co-design with hybrid approach (experience-based co-design incorporating First Nations principles).

Experience based co-design Hybrid approach (EBCD incorporating First Nations principles) Rationale
Setting Health service or health system Engagement with Aboriginal Community Controlled Health Services as the entry point for the study team, with inclusion of community members/Elders, and community services
Ongoing community engagement is essential
To ensure respect for cultural governance processes; to ensure consideration of broader social determinants of health
Stakeholders Service users and health professionals work together;
Support from organisational champions is also important
Study participants included: Aboriginal and Torres Strait Islander women (ages 16-45); Aboriginal and Torres Strait Islander community members; Community services and health professionals
Ongoing reflection on dynamics and prioritising Aboriginal women’s worldviews as required
Study also informed by: Study’s Investigators; Aboriginal and Torres Strait Islander leaders; and community consultation
Care was taken to balance numbers and voices of different groups and considered power dynamics
Aboriginal and Torres Strait Islander leadership (academic and local) as well as input from study investigators also informed study
Sharing experiences EBCD aims to keep consumer experience at the centre of the process and recommends: interviews, patient shadowing and observation, and filming and sharing videos of patient experiences with health professionals De-identified stories and examples were shared between participant groups to ensure a common understanding of experiences Privacy and cultural safety concerns meant that the study did not share stories in a video format
Dialogue and decision making Values dialogue with mixed groups of ‘consumers’ and health professionals; uses experiences of service users to identify priorities and solutions Dialogue happened between groups and by sharing findings between groups
Information and experiences from additional stakeholders were incorporated as early findings began to emerge
availability and preferences of participants informed this structure
preferences were related to concerns about cultural security and privacy
Stages Gathering experiences; Understanding experiences; Improving the experience, and Monitoring/Maintaining experience which are implemented in an iterative manner The study used these broad phases to structure activities Timelines and research activities varied between sites and there were lags between phases due to contextual factors