Table 4.
Agreement overall and by subgroup (EQ-5D-Y-3L values and domain-level agreement [proxy-proxy and proxy-child])
| Dimension/HRQoL values | EQ-5D-Y-3L (self and proxy-proxy) AC1 (95% CI) |
EQ-5D-Y-3L (self and proxy-child) AC1 (95% CI) |
|
|---|---|---|---|
| Overall (N = 85) | Walking about | 0.87 (0.8, 0.95) | 0.86 (0.78, 0.94) |
| Looking after myself | 0.78 (0.68, 0.88) | 0.81 (0.71, 0.91) | |
| Doing usual activities | 0.69 (0.57, 0.81) | 0.74 (0.62, 0.85) | |
| Having pain/discomfort | 0.68 (0.55, 0.8) | 0.64 (0.51, 0.77) | |
| Feeling worried, sad or unhappy | 0.58 (0.43, 0.72) | 0.7 (0.58, 0.82) | |
| CCC (95% CI) | EQ-5D-Y-3L values | 0.28 (0.08, 0.46) | 0.26 (0.05, 0.45) |
| Age group | |||
| 6–7 years (n = 23) | Walking about | 0.81 (0.61, 1) | 0.81 (0.61, 1) |
| Looking after myself | 0.54 (0.24, 0.83) | 0.54 (0.24, 0.83) | |
| Doing usual activities | 0.42 (0.1, 0.73) | 0.48 (0.17, 0.78) | |
| Having pain/discomfort | 0.75 (0.52, 0.98) | 0.64 (0.37, 0.9) | |
| Feeling worried, sad or unhappy | 0.59 (0.3, 0.87) | 0.64 (0.37, 0.9) | |
| CCC (95% CI) | EQ-5D-Y-3L values | 0.28 (− 0.13, 0.61) | 0.31 (− 0.08, 0.62) |
| 8–10 years (n = 30) | Walking about | 0.9 (0.77, 1) | 0.86 (0.71, 1) |
| Looking after myself | 0.82 (0.65, 0.98) | 0.9 (0.77, 1) | |
| Doing usual activities | 0.69 (0.48, 0.91) | 0.74 (0.54, 0.94) | |
| Having pain/discomfort | 0.67 (0.44, 0.89) | 0.7 (0.49, 0.92) | |
| Feeling worried, sad or unhappy | 0.62 (0.39, 0.85) | 0.71 (0.5, 0.92) | |
| CCC (95% CI) | EQ-5D-Y-3L values | 0.34 (− 0.01, 0.61) | 0.36 (0.01, 0.63) |
| 11–12 years (n = 32) | Walking about | 0.9 (0.79, 1) | 0.9 (0.79, 1) |
| Looking after myself | 0.9 (0.79, 1) | 0.9 (0.79, 1) | |
| Doing usual activities | 0.87 (0.73, 1) | 0.9 (0.79, 1) | |
| Having pain/discomfort | 0.64 (0.42, 0.86) | 0.59 (0.36, 0.82) | |
| Feeling worried, sad or unhappy | 0.52 (0.28, 0.77) | 0.74 (0.54, 0.93) | |
| CCC (95% CI) | EQ-5D-Y-3L values | 0.16 (− 0.18, 0.47) | 0.05 (− 0.29, 0.37) |
| Health condition | |||
| No (n = 59) | Walking about | 0.87 (0.78, 0.97) | 0.86 (0.75, 0.96) |
| Looking after myself | 0.78 (0.65, 0.9) | 0.82 (0.7, 0.93) | |
| Doing usual activities | 0.76 (0.62, 0.89) | 0.76 (0.62, 0.89) | |
| Having pain/discomfort | 0.7 (0.56, 0.85) | 0.68 (0.53, 0.83) | |
| Feeling worried, sad or unhappy | 0.61 (0.45, 0.78) | 0.7 (0.56, 0.85) | |
| CCC (95% CI) | EQ-5D-Y-3L values | 0.24 (− 0.01, 0.46) | 0.19 (− 0.06, 0.42) |
| Yes (n = 26) | Walking about | 0.88 (0.73, 1) | 0.88 (0.73, 1) |
| Looking after myself | 0.79 (0.6, 0.98) | 0.79 (0.6, 0.98) | |
| Doing usual activities | 0.54 (0.26, 0.82) | 0.7 (0.47, 0.93) | |
| Having pain/discomfort | 0.62 (0.37, 0.88) | 0.56 (0.29, 0.83) | |
| Feeling worried, sad or unhappy | 0.49 (0.22, 0.77) | 0.7 (0.47, 0.93) | |
| CCC (95% CI) | EQ-5D-Y-3L values | 0.31 (− 0.07, 0.61) | 0.31 (− 0.07, 0.61) |
Altman’s scale interpretation: ≤ 0.2 = poor, between 0.21 and 0.4 = fair, between 0.41 and 0.6 = moderate, between 0.61 and 0.8 = good, between 0.81 and 1 = very good; EQ-5D-Y-3L proxy-proxy = proxy version 1 report, EQ-5D-Y-3L proxy-child = proxy version 2 report
HRQoL health-related quality of life, AC1 Gwet’s agreement coefficient, CCC Concordance Correlation Coefficient, CI confidence interval