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. 2024 Mar 2;150(1):23–41. doi: 10.1093/bmb/ldae004

Table 1.

Characteristics of the included studies

Author
Date
Country
Title Aim Study designs Population Sample size Settings Disability type Disclosure type Disclosure experience Key outcomes
Price et al.
2017
USA13
Disclosure of Mental Disability by College and University
Faculty: The Negotiation of Accommodations, Supports,
and Barriers
To address the lack of research and understanding of the experiences of faculty members with mental disabilities in higher education Survey College and university members across USA 267 College or University Mental disabilities Formal and informal Reasons for disclosing:
• To request accommodations
• To seek support
• To reduce stigma and build trust
Reasons for not disclosing:
• Fear of negative consequences
• Stigma
• Difficulty finding supportive colleagues or supervisors
• Lack of awareness about mental health issues
Various positive and negative experiences reported in the disclosing process.
Whilst most faculty with mental disabilities disclosed to colleagues, many lacked awareness of available accommodations and feared negative consequences.
Disclosure experiences ranged from positive support to harmful bias, highlighting the need for better institutional support and inclusive workplaces.
Burns and Green
2019
USA23
Academic Librarians’ Experiences and Perceptions
on Mental Illness Stigma and the Workplace
To understand the stigma and address a gap in the literature about
how academic librarians, many of whom are faculty on a tenure track, may experience mental
illness stigma in their professional environments.
Survey including free text questions Academic librarians including 311 diagnosed with a mental illness 549 The survey was distributed amongst American Library Association
Listservs.
Mental health problems Informal Stigma
• expected to ‘work harder’.
• seen as suspicious and ‘taking advantage of the system’.
• Fear of isolation
Training and workshops can reduce stigma.
Pionke
2019
USA24
The Impact of Disbelief: On Being a Library
Employee with a Disability
To explores the
accommodation process, its impact on the employee and the politics and psychology of disbelief and suspicion surrounding disability accommodation.
Case study A librarian 1 N/A Post-traumatic stress
disorder (PTSD)
Formal • Stigma
• Long procedure for accommodation
Ableism
Accommodation, from whichever angle you approach it, is not an easy
thing. Done right, it leads to happier and more dedicated employees who
work more efficiently. Done wrong, accommodations create resentment, a
sense of betrayal and a devaluing of the self for the person who is asking
for them. Whilst the law is clear that accommodations must be offered to
people who ask for them, the law does not stipulate that employers have
to understand, educate or embrace the person with a disability and that is
the crux of the issue.
Cepeda M
2021
USA25
Thrice Unseen, Forever on Borrowed Time: Latina Feminist Reflections on Mental Disability and the Neoliberal Academy To explore the experiences of multiply marginalized faculty members with mental disabilities in the neoliberal academy through a Latina feminist testimonial approach Autoethnography Professor 1 Williams College Bipolar and PTSD Formal • Disclose for securing reasonable workplace accommodation and provide support for other colleagues with non-visible disabilities
• Stigma
• Fear of losing job
• Pressure to prove herself and value at work.
The study advocates for a more inclusive and supportive environment for faculty with non-visible disabilities, emphasizing the need for collective recognition and systemic change within academia to accommodate the diverse experiences of academics with mental health conditions and challenges. She urges for a shift in the discourse surrounding disability in higher education and calls for a more holistic approach to support the needs of faculty members with non-visible disabilities.
Green et al.
2020
USA26
Teaching and Researching with a Mental Health Diagnosis: Practices and Perspectives on Academic Ableism To examine the experiences of academics with mental health diagnoses in the teaching and research process Interviews Academics with mental health diagnoses 9 University settings Mental health conditions Formal and informal Reasons for disclosing:
• Creating open dialogue and reducing stigma
• Obtaining accommodations
• Building trust and empathy
Reasons for not disclosing:
• Fear of discrimination and stereotyping
• Maintaining personal privacy
• Varied positive and negative experiences, including challenges in navigating stigma, accessing accommodations and maintaining academic productivity. Positive experiences include support and understanding by colleagues and students, personal empowerment and raising awareness.
Emphasizes the need for a more inclusive and supportive environment for academics with mental health diagnoses in the academy.
England
2016
USA27
Being open in academia: A personal narrative of mental illness and disclosure To present an autobiographical reflection on the decision to be open about the authors’ mental health status during all stages of her career, from diagnosis as a graduate student through the tenure
process to her present state of working to attain full professor
Narrative autobiography A professor in Geography 1 Department of Geography, Miami University. Bipolar Formal Prefer to disclose because of:
• A belief needing support from friends and colleagues (safety)
• A belief mental illness should be destigmatised. (stigma)
Chronic mental illness is a challenge to disclose in academia. But, universities are becoming more aware of mental health issues and are providing counselling services and programmes to students and staff.
Clayton
2009
USA28
Teacher with a Learning
Disability
To explore disability experiences of a teacher who discloses a learning disability to her Principal Case study A teacher 1 The Northern City Public School Learning disability Formal • Fear of losing job
• Low performance is not because of lack of preparation
It is important to disclose the disability. But there are many views on how disable teachers can continue the job.
Valle et al.
2010
USA29
The Disability Closet: Teachers with Learning
Disabilities Evaluate the Risks and Benefits of
‘Coming Out’
To investigates the factors that influence whether teachers with learning disabilities (LD) choose to disclose their
disability status within public school settings
Interview K-12 special education teacher and student teacher 4 N/A Learning disability Informal • Stigma
• Fear of losing status as an authority
• Some disclosed to only students and their families. (to help others gain a deeper, more positive understanding of LD)
The act of disclosing LD is a not an
event, but a highly personal process, subject to a multitude of ongoing factors and always without finalization.
The research reveals persistent misperceptions about LD amongst educators, leaving some teachers
with LD to feel vulnerable and thus remain undisclosed.
Wood and Happe
2023
UK30
What are the views and experiences of autistic
teachers? Findings from an online survey in the UK
To discover views and experiences of autistic people working in an education
role in the school sector in the UK
Survey (analysis of free text questions) School staff 149 UK Autism N/A • Fear of losing job
• Some lost their job
• Ableism (prejudice)
• Stigma
• Positive and supportive experience
The present findings suggest that autistic staff working in an education role
in schools in the UK experience several impediments to their effective
and successful employment in the sector.
Some participants have positive experiences after disclosing their autism diagnosis, becoming valued members of the school community.
Marshall et al.
2020
UK31
“What should I say to my
employer… if anything?”- My
disability disclosure dilemma
To explore the key issues surrounding teacher/staff disability
disclosures in the UK’s further education (FE) sector
Semi-structured interviews Staff 15 Further Education setting in the Southeast of England Non-visible disabilities including mental conditions N/A • Disclosing is anxious, distressing.
• Seen as incompetence.
• Seen as deficit
Fear of stigma and negative consequences leads most FE teachers to not disclose disabilities.
Teachers with disabilities fear discrimination, lack of promotion or job loss if they disclose.
Horton and Tucker
2014
UK32
Disabilities in academic workplaces: experiences
of human and physical geographers
To explore how diverse disabilities intersect with academic careers, lifestyles and workplaces, focusing on some common disciplinary and
institutional spaces of human and physical geography.
Survey with free text questions Academic staff 75 Respondents from different countries Mental health conditions Informal • Stigma
• Competitive working environment
• Having clout helps to disclose disabilities
• Fear of job lost
There is a need to support those with mental health conditions in academic workplaces. They mostly encountered issues including isolation, lack of support,
distress, pressure, low self-esteem, fear of appearing
‘weak’—overlapped with the often-undisclosed experiences of many ‘non-disabled’ colleagues.
Hiscock and Leigh
2020
UK33
Exploring perceptions of and supporting dyslexia in teachers in higher education in STEM To explore the perceptions of dyslexia and the experiences of teachers with dyslexia in higher education in STEM Mixed methods, online survey and interviews Teachers in higher education 115 Higher education institutions Dyslexia Informal Disclosing dyslexia to assess students and colleagues’ perceptions.
Positives:
• Student acceptance
• More inclusive and supportive learning environment
• Normalizing disability
• Encouraging others
Negatives:

• Stigma
• Fear of judgement or negative consequences
Teachers with dyslexia find acceptance from students and colleagues when being open about their diagnosis. Openness and inclusive practices foster trust and understanding, making higher education more equitable for academics with dyslexia.
Skogen
2012
Canada34
‘Coming into Presence’ as
Mentally Ill in Academia:
A New Logic of Emancipation
To discusses the impact
of stigma on a professor’s decision to either disclose or conceal her illness.
Autoethnography Professor 1 University of Alberta Bipolar Informal • Sigma
• Fear
• Shame
Disclosing a severe mental health issue is a challenging process because of fear, stigma and shame.
Oud
2019
Canada35
Systemic Workplace Barriers for Academic Librarians with
Disabilities
To explore the workplace experiences
of librarians with disabilities working in university libraries in Canada
Interviews Librarians 10 Canadian university libraries Non-visible disabilities including mental conditions Formal and informal • Disclose as a coping strategy or increasing awareness of disability.
• Not disclose because of stigma fear of job or promotion lost.
• Mixed positive and negative experiences on legal work accommodations
The main barriers reported in the study were related to a lack
of awareness or ill-informed view of disability, including an assumption that everyone in the
workplace is nondisabled and negative stereotypes of people with disabilities as lazy and
less productive at work.
Morrison
2019
Canada36
(Un)Reasonable, (Un)Necessary and (In)Appropriate:
Biographic Mediation of Neurodivergence in Academic
Accommodations
To critically examine the institutional demands for personal disclosure and the bureaucratic processes involved in securing workplace accommodations for disabled faculty members in higher education Autoethnography Associate Professor in English at the University of Waterloo 1 University ADHD Informal • Disclosing to promote a positive shift in the disclosure of disabilities
• The extensive and complex nature of the verification process
• The fear of being split into an ‘otherwise qualified’
The study explores the challenges faced by disabled faculty in higher education, focusing on the difficulties of disclosure and accommodation. It emphasizes the dehumanizing verification process, bureaucratic emphasis on essential duties and conflicts between institutions and individuals in securing accommodations. The study advocates for a more holistic approach to rebuilding higher education to support access for disabled individuals.
Wright and Kaupins
2018
New Zealand37
‘What About Us?’
Exploring What It Means
to Be a Management
Educator With
Asperger’s Syndrome
To explore Asperger’s Syndrome impact on teaching and learning
from the instructor’s perspective
Case study - Interview Professor 1 Boise State University Asperger’s syndrome
(AS)
Prefer not disclose • No disclosure but fight with that AS need not be seen as a disability or deficiency in the management classroom.
Using cognitive and behavioural techniques, individuals with AS can effectively manage their symptoms, leading to enhanced teaching delivery and assessment methods.
Sanchez
2023
Germany38
Decisions, practices and experiences of disclosure by academics with invisible disabilities at German universities To examine the decisions, practices and experiences of disclosure amongst academics with non-visible disabilities at German universities Interviews Academics with non-visible disabilities at German universities 16 University settings Non- visible disabilities including mental conditions N/A Prefer not to disclose because of:
• Fear of stigma and discrimination
• Concerns about professional competence
• Maintaining personal privacy and boundaries
Academics with non-visible disabilities often feel pressured to present themselves as academically capable and competent individuals, selectively sharing and controlling disability information as an anti-stigma strategy within the abled-normative academia.
Emphasizes the need for a supportive and inclusive environment for academics with non-visible disabilities in German universities.