Table 2.

Themes and subthemes that emerged from the lived experiences of PwPD and their relatives

Theme 1		Theme 2		Theme 3			Theme 4
Experiences		Management support offers		Self-management			Future necessities
Subtheme 1	Subtheme 2	Subtheme 1	Subtheme 2	Subtheme 1	Subtheme 2	Subtheme 3	Subtheme 1	Subtheme 2
Experiences around the diagnosis	Experiences with care provision	Supporters	Type of support	Comprehensibility	Meaningfulness	Manageability	Deficits	Needs
Perspectives of PwPD
• Diagnosis transmission • Symptoms • Challenges • Reactions • Initial questions	• Involved professionals • Treatment offers • Care provision setting • Health insurance	• Specialised clinics • Parkinson’s associations • Contact person	• Individual training • Informational assembly	• Self-assessment • Conveying information • Information channels	• Acceptance • Repression • Positive mind set • ‘Enjoying today’	• Shaping ‘life 2.0’ • Network building • Family support • Household support • Relationship	• Structured and adequate information provision • Adequate time • Capabilities • System orientation • Social perceptions	• Holistic and comprehensive care concept • Structured training programme • Networks and peer support • Psychological support • Relatives support
Perspectives of relatives of PwPD
• Diagnosis transmission • Challenges • Reactions and emotions • Initial questions	• Involved professionals • Treatment offers • Psychological support	• No support service • Specialised clinics • Parkinson’s associations	• Informational assembly	• Self-assessment • Conveying information • Information channels	• Acceptance • Positive mindset • Self-initiative	• Shaping ‘life 2.0’ • Communication with the children • Network building • Physical activity	• Information • Understanding treatment • System orientation • Support for relatives • Social perceptions	• Holistic and comprehensive care concept • Networks and peer support • Psychological support