To measure what benefit the prehabilitation has on the patient's recovery if serious complications occur. Such as are they off the ventilators earlier; ability to walk independently sooner; are they coping better psychologically, etc. |
9 |
Yes |
Yes |
112, 113, 109 |
Already included—no further action required |
|
Body composition—muscle mass/muscle quality |
8 |
Yes |
No |
96, 97, 98 |
Already included—modification to existing outcome/standard wording needed to clarify |
|
My support network, a.k.a. my family and friends |
9 |
No |
No |
|
Not an outcome/standard |
|
Prehabilitation during COVID |
9 |
No |
No |
|
Not an outcome/standard |
|
How to manage patient expectations |
9 |
No |
No |
|
Not an outcome/standard |
|
Healthcare professionals’ likelihood to adapt to a patient’s personal nutritional and physical therapy when those standards are not within protocols—computer says no |
9 |
No |
No |
|
Not an outcome/standard |
|
Allow me as the patient to document the success of the intervention pre, during and post. I would like it above my bed ‘prehab optimized and independent documenter’, ha ha what are the chances? |
9 |
No |
No |
|
Not an outcome/standard |
|
Abdominal muscle function/activation measured by ultrasound |
9 |
|
|
|
|
|
Preop input is so vital in getting the best post surgery. The psychological side of surgery coupled with the need to look at diet should be paramount for the best possible recovery. Using veteran patients to support existing patients along with the expertise of a dietician and colorectal doctor or nurse would only aid a speedier recovery; when patients get left behind so does their morale and subsequent recovery time |
9 |
Yes |
Yes |
88 |
Already included—no further action required |
|
Pulse wave velocity (a measure of vascular stiffness) |
8 |
Yes |
No |
|
To be added to round 2 |
|
Patient’s spouse should be involved in the whole prehabilitation process (offered/delivered) |
9 |
Yes |
No |
|
To be added to round 2 |
|
% muscle mass |
6 |
Yes |
No |
96, 97, 98 |
Already included—modification to existing outcome/standard wording needed to clarify |
|
Survival outcomes |
7 |
Yes |
No |
|
To be added to round 2 |
|
Quality of life scores |
9 |
Yes |
Yes |
109,110 |
Already included- no further action required |
|
Completion of chemotherapy/radiotherapy |
7 |
Yes |
No |
117 |
Already included—modification to existing outcome/standard wording needed to clarify |
|
Patient experience |
9 |
yes |
yes |
109 |
Already included—no further action required |
|
WHODAS 2.0 (assessment of health and disability) |
8 |
Yes |
Yes |
90–99 and 109–111 |
To be added to round 2 |
|
Short physical performance battery |
7 |
No |
No |
90–99 and 109–111 |
Not an outcome/standard |
|
Family/carer voice |
9 |
Yes |
No |
|
To be added to round 2 |
|
Prehab should be community-based with leverage into long-term exercise behaviour change |
9 |
Yes |
Yes |
8 to 11 |
Already included–no further action required |
|
Compliance with postop ERAS goals |
7 |
No |
No |
|
Not an outcome/standard |
|
Cancer recurrence rate |
6 |
Yes |
No |
|
To be added to round 2 |
|
Cost saving of prehabilitation programme |
7 |
No |
No |
|
Not an outcome/standard |
|
Patient activation measures |
8 |
Yes |
Yes |
109, 110 |
To be added to round 2 |
|
Joining a peer group for support from other similar patients with more experience |
6 |
No |
No |
|
Not an outcome/standard |
|
Mentoring with one-on-one contact to another patient in similar situation |
5 |
Yes |
Yes |
|
Already included—no further action required |
|
Prehabilitation for friend or family member who will support the patient's recovery at home |
7 |
No |
No |
|
Not an outcome/standard |
|
Are patients expectations met? |
6 |
No |
No |
|
Not an outcome/standard |
|
How important is the role of local cancer support charities in signposting to prehabilitation advice? |
7 |
No |
No |
|
Not an outcome/standard |
|
How important is role of community-based charities and other support groups in delivery of prehabilitation? |
7 |
No |
No |
|
Not an outcome/standard |
|
Risk triage tool that medically and rehabilitaion dichotomizes prehabilitation assessment and intervention needs to support programme |
9 |
No |
No |
|
Not an outcome/standard |
|
Changes in negative lifestyle behaviours (e.g. smoking; drinking >14 units alcohol per week; amount of physical activity per week) (WHO guidelines) |
9 |
Yes |
No |
|
To be added to round 2 |
|
DASI score |
7 |
Yes |
Yes |
|
To be added to round 2 |
Think this and WHODAS can be added as a separate item ‘global measure of health and function, e.g. WHODAS or DASI score’ |
Qualitative analysis of prehabilitation (e.g. acceptance to patients and healthcare professionals) |
9 |
No |
No |
|
Not an outcome/standard |
|
Patient activation measure as measure of patient self-efficacy—important to commissioners |
7 |
Yes |
Yes |
109, 110 |
To be added to round 2 |
I think this is different—needs adding as its own item |
Postoperative course longer than hospital stay (e.g. A&E attendances; readmission rates and primary care visits up to 12 months post-surgery) |
7 |
Yes |
No |
|
To be added to round 2 |
|
Vitamin D assessment |
9 |
No |
No |
|
Not an outcome/standard |
|
Institution-free days to 12 months after surgery |
9 |
No |
No |
|
Not an outcome/standard |
|
Consultant needs to encourage prehabilitation in the initial instance to the patient |
9 |
No |
No |
|
Not an outcome/standard |
|
Specialist nurse needs to encourage prehabilitation to the patient |
9 |
No |
No |
|
Not an outcome/standard |
|
Contact with the physiotherapist (face to face—if possible) |
9 |
Yes |
Yes |
82 |
Already included- no further action required |
|
Cardiopulmonary exercise test |
9 |
Yes |
Yes |
90 |
Already included—no further action required |
|
Assessment with the physiotherapist to identify objectives and plan of prehabilitation |
9 |
Yes |
Yes |
82 |
Already included—no further action required |
|
Outcome measures—6MWT; sit to stand; grip strength; BMI; maximum inspiratory pressure (MIP); balance test |
9 |
Yes |
Yes |
89–99 |
Already included—no further action required |
|
Food diary given to patient in initial assessment with the physio then after this has been kept a few days—a dietetics assessment |
9 |
Yes |
Yes |
27–33 |
Already included—no further action required |
|
Bespoke gym programme with a gym instructor/exercise physio—overseen by the physio 3–4× weekly—supervised |
9 |
Yes |
Yes |
23–26 |
Already included—no further action required |
|
Inspiratory muscle training 2× daily—supervised if possible/or via telephone with patients keeping a record of their progress for feedback |
9 |
Yes |
Yes |
18 |
Already included—no further action required |
|
Physio can flag up potential function needs if they need and possible things they’ll require from a psychologist |
9 |
No |
No |
|
Not an outcome/standard |
|
Training programme should be completed for at least 4 weeks prior to surgery but we’ve seen positive outcomes with only 2 weeks training |
9 |
Yes |
Yes |
23–26 |
Already included- no further action required |
|
Re-do outcomes the week before their surgery |
9 |
No |
No |
|
Not an outcome/standard |
|
Physio throughout can manage patient expectations and what will be expected of them the day post-surgery (i.e. getting out of bed) |
9 |
No |
No |
|
Not an outcome/standard |
|
Physiotherapist who prehabbed the patients sees the patient the day post-surgery as they will know their baseline, etc. and already have a good rapport with the patient |
9 |
No |
No |
|
Not an outcome/standard |
|
Experience from stoma patients—living with a stoma |
6 |
No |
No |
|
Not an outcome/standard |
|
Ease of access to prehabilitation for the patient |
9 |
Yes |
Yes |
94 |
Already included—no further action required |
|
Affordability of prehabilitation for the patient |
9 |
No |
No |
|
Not an outcome/standard |
|
The patient is key to the content/design of their prehabilitation programme |
9 |
Yes |
Yes |
14 |
Already included—no further action required |
|