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. 2024 Jun 28;97(2):115–124. doi: 10.59249/NZCS6192

Table 2. Preparedness of Patients with CKD to Engage in ACP.

Topic Prepared Not prepared
Understanding of diagnosis “...I was told that my kidney function has reduced. The kidney is damaged.” (Participant 4) “The doctor said the kidney is either in good condition or in bad condition.” (Participant 1)
Progression of the disease “The disease can cause total damage to the kidney and can be life-threatening. Additionally, it may lead me to a point where I would require dialysis treatment.” (Participant 9) “I don’t know, pause I don’t know” – the participant expressed with a sad facial expression. “It all depends on God because He knows. Even when a car is spoiled, God provides mechanics with the knowledge to repair the fault in the car. So, God will provide the doctors with the knowledge to be able to treat me,” (Participant 6)
Treatment preference “I don’t want to be given an injection to hasten my death when [my condition] deteriorates. However, I wish to have comfort measures and to go home at God’s own appointed time.” (Participant 3) “If I stop dialysis now, it is like I am sentencing myself to the grave, and I am just 44 years old. If the cost of dialysis is reduced, then even if I have to undergo it for 30 years, I can still afford it.” (Participant 4)
Place of care and death “I wish to be receiving care in my home and die in arms of my family.” (Participant 7) “I want to be taken care in the hospital and die here.” (Participant 2) “God does miracles in so many ways. I believe by God’s grace I will recover. I wish God postpones my death.” (Participant 11)