Table 7.
Descriptive statistics of the HRQoL measures according to demographic characteristics.
| VAS | EQ-5D-5L Index | LSS | |||||
|---|---|---|---|---|---|---|---|
| n (%) | Mean (SD) | Median (IQR) | Mean (SD) | Median (IQR) | Mean (SD) | Median (IQR) | |
| Overall | 90 (100) | 0.61 (0.21) | 0.60 (0.49–0.80) | 0.74 (0.26) | 0.81 (0.68–0.91) | 0.70 (0.24) | 0.75 (0.50–0.90) |
| Sex | |||||||
| Male | 22 (24.4) | 0.59 (0.25) | 0.60 (0.40–0.80) | 0.70 (0.34) | 0.80 (0.62–0.92) | 0.68 (0.29) | 0.77 (0.49–0.91) |
| Female | 68 (75.6) | 0.62 (0.20) | 0.60 (0.50–0.79) | 0.75 (0.23) | 0.81 (0.68–0.91) | 0.70 (0.23) | 0.75 (0.51–0.90) |
| p-value a | 0.745 | 0.866 | 0.974 | ||||
| Age at start survey, years | |||||||
| ≤54 | 31 (34.5) | 0.60 (0.22) | 0.60 (0.45–0.75) | 0.66 (0.30) | 0.77 (0.58–0.84) | 0.62 (0.25) | 0.65 (0.50–0.80) |
| 55–64 | 22 (24.4) | 0.62 (0.23) | 0.65 (0.44–0.72) | 0.74 (0.24) | 0.80 (0.58–0.91) | 0.69 (0.24) | 0.72 (0.49–0.87) |
| 65+ | 37 (41.1) | 0.61 (0.20) | 0.60 (0.50–0.80) | 0.80 (0.21) | 0.86 (0.78–0.93) | 0.77 (0.22) | 0.85 (0.70–0.90) |
| p-value b | 0.980 | 0.025 | 0.023 | ||||
| Age at onset, years | |||||||
| ≤40 | 22 (24.5) | 0.65 (0.25) | 0.60 (0.50–0.90) | 0.71 (0.31) | 0.79 (0.66–0.88) | 0.68 (0.26) | 0.72 (0.50–0.86) |
| 41–55 | 38 (42.2) | 0.56 (0.19) | 0.52 (0.40–0.70) | 0.69 (0.25) | 0.78 (0.56–0.87) | 0.64 (0.24) | 0.70 (0.45–0.85) |
| 55+ | 30 (33.3) | 0.65 (0.21) | 0.67 (0.50–0.81) | 0.82 (0.21) | 0.88 (0.78–0.95) | 0.78 (0.22) | 0.85 (0.69–0.95) |
| p-value b | 0.110 | 0.020 | 0.023 | ||||
| Comorbidities | |||||||
| None | 23 (25.5) | 0.67 (0.21) | 0.70 (0.60–0.80) | 0.76 (0.29) | 0.83 (0.70–0.94) | 0.73 (0.25) | 0.90 (0.65–0.90) |
| One | 34 (37.8) | 0.64 (0.21) | 0.60 (0.50–0.81) | 0.75 (0.26) | 0.83 (0.70–0.92) | 0.72 (0.24) | 0.77 (0.61–0.91) |
| Two or more | 33 (36.7) | 0.54 (0.20) | 0.50 (0.35–0.70) | 0.71 (0.24) | 0.78 (0.58–0.88) | 0.65 (0.24) | 0.75 (0.65–0.85) |
| p-value b | 0.029 | 0.253 | 0.357 | ||||
| Type of disorder | |||||||
| Dystonia | 72 (80.0) | 0.59 (0.21) | 0.60 (0.45–0.70) | 0.71 (0.26) | 0.79 (0.65–0.88) | 0.66 (0.24) | 0.70 (0.50–0.85) |
| Hemispasm | 18 (20.0) | 0.70 (0.20) | 0.70 (0.54–0.91) | 0.84 (0.21) | 0.91 (0.81–0.97) | 0.83 (0.20) | 0.90 (0.75–0.96) |
| p-value a | 0.049 | 0.004 | 0.003 | ||||
| Disease duration, years | |||||||
| ≤8 | 49 (54.4) | 0.60 (0.20) | 0.60 (0.47–0.70) | 0.69 (0.30) | 0.80 (0.62–0.89) | 0.66 (0.26) | 0.75 (0.50–0.85) |
| 9 to 14 | 26 (28.9) | 0.68 (0.20) | 0.70 (0.50–0.80) | 0.85 (0.13) | 0.87 (0.78–0.95) | 0.80 (0.17) | 0.82 (0.74–0.95) |
| 15 or more | 15 (16.7) | 0.53 (0.23) | 0.50 (0.30–0.60) | 0.69 (0.23) | 0.78 (0.55–0.81) | 0.63 (0.24) | 0.70 (0.35–0.80) |
| p-value b | 0.062 | 0.024 | 0.029 | ||||
a Mann–Whitney U test; b Kruskal–Wallis H test.