Table 1.
Characteristics of participants
| Step 1 Concept elicitation 1 n = 15 |
Step 2 Pilot testing 1 n = 16 |
Step 3 Concept elicitation 2 n = 12 |
Step 4 Focus group n = 16 |
Step 5 Pilot testing 2 n = 7 |
||
|---|---|---|---|---|---|---|
| Country | Canada | 8 | 1 | 12 | 16 | 7 |
| USA | 7 | 5 | 0 | 0 | 0 | |
| Denmark | 0 | 10 | 0 | 0 | 0 | |
| Age | <39 | 0 | 1 | 2 | 1 | 1 |
| 40–49 | 5 | 3 | 3 | 3 | 2 | |
| 50–59 | 5 | 2 | 3 | 8 | 3 | |
| 60–69 | 3 | 4 | 3 | 3 | 1 | |
| ≥70 | 2 | 4 | 1 | 1 | 0 | |
| Race | White | 13 | – | 12 | 14 | 6 |
| Other | 2 | – | 0 | 2 | 1 | |
| BMI | Underweight (<18.5) | 1 | – | 0 | 0 | 0 |
| Normal weight (18.5–24.9) | 4 | – | 1 | 5 | 3 | |
| Overweight (25–29.9) | 6 | – | 4 | 4 | 2 | |
| Obese (≥30) | 4 | – | 7 | 5 | 2 | |
| Missing | 0 | 0 | 1 | 0 | ||
| Marital status | Married | 10 | 11 | 9 | 10 | 4 |
| Common law | 2 | 1 | 0 | 1 | 1 | |
| Separate/divorced | 1 | 1 | 2 | 4 | 2 | |
| Single | 1 | 1 | 0 | 1 | 0 | |
| Widowed | 1 | 1 | 1 | 0 | 0 | |
| Highest education | <High school | 0 | – | 1 | 0 | 0 |
| High school | 5 | – | 2 | 4 | 0 | |
| College, trade or university | 7 | – | 7 | 9 | 3 | |
| Masters or Doctoral degree | 3 | – | 2 | 3 | 4 | |
| Work | Working full-time | 8 | – | 6 | 7 | 5 |
| Self-employed | 1 | – | 1 | 0 | 1 | |
| Causal work | 1 | – | 0 | 0 | 1 | |
| Retired | 2 | – | 3 | 2 | 0 | |
| Not working | 3 | – | 2 | 7 | 0 | |
| Household income | <25K | 1 | – | 0 | 1 | 0 |
| 25K–50K | 2 | – | 1 | 1 | 1 | |
| 50K–75K | 3 | – | 4 | 2 | 0 | |
| >75K | 6 | – | 7 | 8 | 5 | |
| Prefer to not say | 3 | – | 0 | 4 | 1 | |
| Time since diagnosis | <1 year | 2 | – | 0 | 0 | 0 |
| 1–5 years | 10 | – | 7 | 4 | 1 | |
| >5 years | 3 | – | 5 | 11 | 6 | |
| Cancer stage | 1 | 3 | – | 0 | 0 | 0 |
| 2 | 6 | – | 8 | 2 | 2 | |
| 3 | 6 | – | 4 | 8 | 3 | |
| 4 | 0 | – | 0 | 3 | 1 | |
| Not sure | 0 | – | 0 | 2 | 1 | |
| Not applicable | 0 | – | 0 | 1 | 0 | |
| Surgery type | Mastectomy | 12 | 11 | 10 | 8 | 4 |
| Lumpectomy | 3 | 4 | 2 | 6 | 3 | |
| Othera | 0 | 0 | 0 | 2 | 0 | |
| Breast reconstruction | Yes | 8 | – | 0 | – | – |
| No | 7 | – | 12 | – | – |
Data for one U.S.A cognitive debriefing interview participant is missing
aFocus groups included one participant with melanoma and one participant with ovarian cancer