Search	Query	Records retrieved
#1	(“lysosomal storage diseases” or “peroxisomal disorders” or leukodystrophy or metachromatic or Krabbe or adrenoleukodystrophy) and (patient or patients or participant or participants or family or families or mother or mothers or father or fathers or parents or grandparent or grandparents or grandfather or grandfathers or grandmother or grandmothers or child or children or sibling or siblings or carer or carers or caregiver or caregivers) and ((life or living or well-being or experience or care or challenge or advantage or disadvantages or attitude or emotions or stress or frustration or satisfaction or dissatisfaction) or (“genetic therapy” or “hematopoietic stem cell transplantation” or “bone marrow transplantation” or “cord blood stem cell transplantation” or “gene therapy”))	54