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. 2023 Dec 12;31(3):e16171. doi: 10.1111/ene.16171

TABLE 5.

Top three diseases and research gaps according to the patient representatives.

Panel Society Top 3 diseases Top 3 gaps
Movement disorders Dystonia Europe

  1. Restless legs

  2. Nonmotor symptoms (e.g., insomnia, depression) in movement disorders

  3. Joint collaborative research

  1. Awareness

  2. Training and education

  3. Multidisciplinary treatment
Parkinson's Europe

  1. Parkinson disease (idiopathic and genetic)

  2. Parkinson disease (dementia)

  3. Dementia with Lewy bodies

  1. Prevention

  2. Training and education

  3. Funding
Headache The migraine movement

  1. Migraine

  2. Cluster headache

  3. Tension type headache

  1. Education and training

  2. International big data on prevalence

  3. Implementation and availability of advanced scientific techniques
Pain EFNA

  1. Stroke

  2. Alzheimer disease

  3. Parkinson disease

  1. Implementation and availability of advanced scientific techniques

  2. Timely and adequate treatment

  3. Timely and adequate diagnosis
Sleep–wake disorders EFNA

  1. Restless legs syndrome

  2. General insomnia

  3. Daytime sleepiness

  1. Funding

  2. Education and training

  3. Awareness
Palliative care EFNA

  1. Pain in neurological conditions

  2. Sleep disorders in neurological conditions

  3. Psychological and psychiatric problems in neurological conditions

  1. Fast access to diagnosis

  2. Development and implementation of guidelines

  3. Epidemiology

Abbreviation: EFNA, European Federation of Neurological Associations.