Table 1.
Participant characteristics – NCI & CMS’ SEER-CAHPS data linkage, years 1999–2019, female breast cancer survivors completing a CAHPS survey post-diagnosis (N = 19,017)
| N (%) | |
|---|---|
| Age at CAHPS survey ☐ | |
| 65 – 69 | 4296 (22.6) |
| 70 – 74 | 4973 (26.2) |
| 75 – 79 | 4090 (21.5) |
| 80 – 84 | 3056 (16.1) |
| ≥ 85 | 2602 (13.7) |
| Missing | 0 (0.0) |
| Age at diagnosis ☐ | |
| ≤ 69 years at diagnosis | 10,212 (53.7) |
| ≥70 years at diagnosis | 8805 (46.3) |
| Missing/Unknown | 0 (0.0) |
| Census tract poverty indicator | |
| 0%→ 20% poverty | 15,126 (79.5) |
| 20%—100% poverty | 2649 (13.9) |
| Missing/Unknown | 1242 (6.5) |
| Race/ethnicity | |
| ;Non-Hispanic white (NHW) | 14,859 (78.2) |
| ;Non-Hispanic Black (NHB) | 1544 (8.1) |
| ;Non-Hispanic Asian (NHA) | 1239 (6.5) |
| Hispanic | 1181 (6.2) |
| Other/Multi-racial | 194 (1.0) |
| Missing | 0 (0.0) |
| Educational ☐ | |
| < High school | 2673 (14.1) |
| High school graduate or GED | 6158 (32.4) |
| Some college | 4822 (25.4) |
| College graduate or higher | 4217 (22.2) |
| Missing/Unknown | 1147 (6.0) |
| Medicare plan type | |
| FFS Medicare | 4551 (23.9) |
| Other** | 14,466 (76.1) |
| Missing/Unknown | 0 (0.0) |
| ER status | |
| ER + | 10,816 (56.9) |
| ER− | 1921 (10.1) |
| Borderline | 13 (0.1) |
| Unknown or Not 1990 + | 1330 (7.0) |
| Missing | 4937 (25.9) |
| Extent of disease | |
| Localized | 15,304 (80.5) |
| Regional | 3304 (17.4) |
| Distant | 409 (2.1) |
| Missing | 0 (0.0) |
| Chemotherapy for treatment | |
| No/Unknown | 10,466 (55.0) |
| Chemotherapy | 3614 (19.0) |
| Missing | 4937 (26.0) |
| Radiation for treatment | |
| No/Unknown/Other≠ | 6379 (33.5) |
| Radiation£ | 7701 (40.5) |
| Missing | 4937 (26.0) |
| M (SD) [Range] | |
| Age at diagnosis (continuous) ☐ | 69.2 (8.45) [33 – 100] |
| Years from diagnosis to CAHPS survey | 6.10 (4.92) [0 – 42.2] |
| Number of CMS comorbid conditions *** | 4.65 (3.51) [1 – 16] |
| Getting care quickly (composite) | 72.7 (23.6) [0 – 100] |
| Getting needed care (composite) | 86.8 (20.2) [0 – 100] |
| Physician communication (composite) | 90.3 (15.9) [0 – 100] |
| Getting needed prescription drug(s) (composite) | 91.1 (18.3) [0 – 100] |
| Overall care rating | 87.5 (16.6) [0 – 100] |
| Health plan rating | 86.2 (17.2) [0 – 100] |
| Personal doctor rating | 90.8 (14.5) [0 – 100] |
CMS Centers for Medicare & Medicaid Services
ER estrogen receptor
FFS Fee-for-service
NCI National Cancer Institute
NHA non-Hispanic Asian or Pacific Islander
NHB non-Hispanic Black/African American
NHW non-Hispanic white
PR progesterone status
SEER Surveillance, epidemiology, and end results program
Includes American Indian/Alaska Native, Other unspecified, unknown, or multi-racial
Includes Prescription Drug Plan (PDP), Medicare Advantage (MA), and MA combinations (MA-PDP, MA-Preferred Provider Organization [PPO])
CMS comorbid conditions included those listed: https://www.cms.gov/Research-Statistics-Data-and-Systems/Statistics-Trends-and-Reports/Chronic-Conditions/CC_Main
Indicates a variable that is mutually adjusted as a case-mix or covariate adjustment when not being included as a stratification
Includes no radiation, unknown/missing, and patients who were recommended radiation (but unknown if they completed) or patients who refused radiation
Includes all types of radiation (beam radiation, radioactive implants, radioisotopes, combination radiation, radiation not otherwise specified, and other types of radiation)
Bold font indicates significant p-value of one-way analysis of variance for continuous variables or Chi-square analyses for categorical variables