Accessibility |
Count the amount of clicks Availability of a search bar
0—No search bar
1—Search bar
Score calculation Score =
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Scope |
Number of questions answered/total number of questions
JCOs: Questionnaire A1: questions 2–6, excluding 1 and 7. Score out of 23
UKOs: Questionnaire A2: questions 2–6, excluding 1 and 7. Score out of 23
GTPs: Questionnaire A3: questions 2–8. Score out of 26
Number of questions answered/total number of questions per section Score calculation Score =
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Depth |
Included questions:
BRCA-associated cancers
0—Brief or no information: only breast and/or ovarian
1—In depth: includes prostate, pancreas, and/or melanoma
BRCA carrier risk management options
0—Brief or no information: 1–2 options mentioned
1—In depth: all management options (risk-reducing surgery, medication, screening) and/or other options such as lifestyle management
Difference of carrier frequency between AJ and non-AJ populationsExplanation of BRCA inheritance Increased cancer risks for BRCA carriers
0—Brief or no information: Only brief mention of increased risk of a BRCA-associated cancer or includes general stats for increased risk of a BRCA-associated cancer
1—In depth: Includes statistics or details that differentiate between BRCA1 & BRCA2 risks or includes statistics or details for different BRCA1 & BRCA2 risks for >2 relevant cancers
Signposting to further BRCA information, service, and support resourcesScore calculation Score =
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Accuracy * |
Included questions:
BRCA-associated cancers
0—Inaccurate: any mention of other cancers than the correct ones.
1—Accurate: needs to include breast, ovarian, melanoma, pancreatic or prostate.
BRCA carrier risk management options
0—Inaccurate: wrong management options i.e., for example, screening for ovarian cancer
1—Accurate: appropriate chemoprevention, risk-reducing surgery or screening in line with clinical guidelines
Carrier frequency/prevalence in AJ population Carrier frequency/prevalence in general populationIncreased cancer risks for BRCA carriers female breast cancer and ovarian cancer [1,2,29]Increased cancer risks for BRCA carriers male breast cancer, prostate cancer, pancreatic cancer, and melanoma [1,2,29]Score calculation Score =
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Quality |
DISCERN score from final question (Q16). Score calculation Score =
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