Table 1.
Demographic and socio-economic characteristics of retinoblastoma (RB) patients related to first visit to RB tertiary care unit, Lady Ridgeway Hospital (LRH), based on the medical records (MR) at LRH and telephone survey (TS)
| 1 A. | Demographic & socioeconomic features obtained from clinical records at LRH during first visit | |
|---|---|---|
| Variable | Frequency | |
| 01. | Age (months) of RB patients | |
| a. | Total sample ( N = 171) | |
| 00–10 | 61 (35.7%) | |
| 11–20 | 51 (29.8%) | |
| 21–30 | 23 (13.4%) | |
| 31–40 | 14 (08.2%) | |
| > 41 | 22 (12.9%) | |
| b. | Unilateral cases ( n = 120; 70.2%) | |
| 00–10 | 29 (24.2%) | |
| 11–20 | 38 (31.7%) | |
| 21–30 | 18 (15.0%) | |
| 31–40 | 13 (10.8%) | |
| > 41 | 22 (18.3%) | |
| c. | Bilateral cases ( n = 51; 29.8%) | |
| 00–10 | 32 (62.7%) | |
| 11–20 | 13 (25.5%) | |
| 21–30 | 05 (09.8%) | |
| 31–40 | 01 (02.0%) | |
| ≥ 41 | 00 (00.0%) | |
| 02. | Gender ( N = 171;100%) | |
| Male | 82 (48.0%) | |
| Female | 89 (52.0%) | |
| 03. | Residential area of patients by province ( N = 171;100%) | |
| Western | 59 (34.5%) | |
| Southern | 22 (12.9%) | |
| Sabaragamuwa | 17 (09.9%) | |
| North Western | 15 (08.8%) | |
| Central | 15 (08.8%) | |
| North Central | 09 (05.3%) | |
| Uva | 16 (09.4%) | |
| Eastern | 10 (05.8%) | |
| Northern | 08 (04.7%) | |
| 1 B. | Demographic and socioeconomic characteristics obtained from TS | |
|---|---|---|
| Variable | Frequency (N = 90) |
|
| 4. | Ethnicity | |
| Sinhala | 69 (76.7%) | |
| Tamil | 10 (11.1%) | |
| Moor | 11 (12.2%) | |
| 5. | Parental age (years) at birth of index child | |
| Father | ||
| 15–20 | 01 (01.1%) | |
| 21–30 | 19 (21.1%) | |
| 31–40 | 65 (72.2%) | |
| 41–50 | 05 (05.6%) | |
| Mother | ||
| 15–20 | 03 (03.3%) | |
| 21–30 | 55 (61.1%) | |
| 31–40 | 32 (35.6%) | |
| 41–50 | 00 (00.0%) | |
| 6 | Parents’ educational status | |
| a. | Father | |
| Below General Certificate of Education (GCE) Ordinary level | 14 (15.6%) | |
| Passed GCE Ordinary level | 51 (56.7%) | |
| Passed GCE Advanced level | 20 (22.2%) | |
| Tertiary education | 05 (05.6%) | |
| b. | Mother | |
| Below GCE Ordinary level | 10 (11.1%) | |
| Passed GCE Ordinary level | 41 (45.6%) | |
| Passed GCE Advanced Level | 26 (28.9%) | |
| Tertiary Education | 13 (14.4%) | |
| 7. | Parents’ Occupation # | |
| a. | Father | |
| Unemployed | 02 (02.2%) | |
| Skill level 1 | 07 (07.8%) | |
| Skill level 2 | 60 (66.7%) | |
| Skill levels 3 and 4 | 16 (17.8%) | |
| Armed forces | 05 (05.6%) | |
| b. | Mother | |
| Unemployed/ Homemakers | 72 (80.0%) | |
| Skill level 1 | 06 (06.7%) | |
| Skill level 2 | 06 (06.7%) | |
| Skill levels 3 and 4 | 06 (06.7%) | |
| Armed forces | 00 (00.0%) | |
| 8. | Total family income per month (Rupees) | |
| ≤ 10,000 | 07 (07.8%) | |
| 10,001–20,000 | 24 (26.7%) | |
| 20,001–30,000 | 17 (18.9%) | |
| 30,001–50,000 | 17 (18.9%) | |
| >Rs. 50,000 | 25 (27.8%) | |
| 9. | Receiving financial assistance | |
| Yes | 19 (21.1%) | |
| No | 71 (78.9%) | |
| 10. | Distance (km) from residence to LRH | |
| ≤ 1 | 02 (02.2%) | |
| 1.1–5 | 04 (04.4%) | |
| 5.1–10 | 27 (30.0%) | |
| 10.1–50 | 16 (17.8%) | |
| > 50 | 41 (45.6%) | |
#Occupations categorized according to international standard classification of occupation (ISCO-88) of the International Labour Organization: Skill level 1 - Elementary occupations; Skill level 2 - clerks, service workers and shop and market sales workers, skilled agricultural and fishery workers, craft and related trades workers, plant and machine operators and assemblers; Skill levels 3 & 4 - legislators, senior officials and managers, professionals, technicians and associate professionals