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. 2024 Jul 4;8:e53289. doi: 10.2196/53289

Table 2.

Overarching themes and the list of corresponding codes developed to describe family and hired caregivers’ health information management and communication experiences in complex home care settings for older adults through inductive qualitative analysis.

Themes and subthemes Codes

Family caregivers Hired caregivers
Updating the caregiver team

Binder-based health documentation


  • Physical documentation

  • Keeping personal notes to support safety

  • Transparency of recordkeeping

  • Managing medications

  • The burden of physical documentation

  • Keeping personal notes to support safety

  • Capturing holistic information


Digital health documentation


  • Desire to ease documentation

  • Concerns regarding information silos


Communication practices beyond the binder


  • Calling and texting caregivers

  • Ensuring awareness of the patient status

  • Leaving notes for caregivers

  • Reminding caregivers

  • Bringing information to clinicians

  • Calling and texting caregivers

  • Handing off care

  • Leaving notes around the home

Learning to improve care and decision-making

Developing expertise as a family caregiver


  • Understanding medications and the health condition

  • Learning from caregivers and health care professionals

a

Tailoring expertise as a hired caregiver


  • Learning from caregivers

  • Having prior knowledge

  • Learning through observation

  • Learning from the client

  • Reviewing documentation and health care records

Conflicts within caregiver teams

2-way communication


  • Expressing concerns

  • Struggling to share information

  • Sharing the client’s perspective

  • Providing instructions

  • Communicating health concerns with health care professionals

  • Planning together

  • COVID-19 pandemic impacting care continuity

  • Coordinating with caregivers

  • Establishing communication boundaries

  • Feelings of control over information sharing


Trusting the caregiver team


  • Talking through tasks

  • Worrying about the quality of care

  • Watching caregivers

aNot applicable.