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. 2024 Jul 18;8(8):e0486. doi: 10.1097/HC9.0000000000000486

TABLE 1.

The six core elements: Integrating young adult liver transplant recipients into adult transplant healthcare

Core element Strategies Resources
I. Transition and care policy guide • Adapt pediatric policy to adult health care practice.
• Discuss the adult approach to care, privacy, and consent.
• Discuss policy with YA at first visit
https://gottransition.org/6ce/?integrating-policy
II. Tracking and monitoring • Decide on data to be tracked.
• Create flowsheet through EMR, REDCap, or Excel.
• Define responsibilities for data entry and review.
• Confirm that the YA has established care with a PCP
https://gottransition.org/6ce/?integrating-flow-sheet
https://www.gottransition.org/6ce/?integrating-registry
III. Orientation to adult
practice
• Welcome packet or website with adult team information, contact numbers, and FAQs.
• Define team members’ responsibilities for developing content, providing information, and tracking completion
https://www.gottransition.org/6ce/?integrating-welcome-orientation
https://gottransition.org/resource/?sample-welcome-Atrium
IV. Integration into adult practice • Review the transfer package, including medical summary, TRA, and legal documents.
• Conduct routine meetings with the pediatric team to review YAs in the queue for transfer (affiliated centers).
• Make previsit contact with the YA (phone, email, text, portal, and Meet and Greet)
Telehealth Toolkit (gottransition.org)
V. Initial visit • Clarify adult approach to care and privacy/consent.
• Set expectations for adherence and methods of communication.
• Address YA concerns regarding transfer of care and practice changes.
• Conduct self-care skills assessment.
• Collaborate with YA on the plan of care and future goals
https://gottransition.org/resource/?turning-18-english
https://www.gottransition.org/6ce/?integrating-self-care-assessment
Vittorio et al (2023), Table 4, pp. 96–97 3
VI. Ongoing care • Provide information about transfer completion to the pediatric team.
• Link YA to adult specialty care.
• Build collaborative partnerships with PCP and specialists.
• Seek feedback from the YA on their transition experience.
• Send reminders for laboratory appointments and other required tests for at least one year
https://gottransition.org/6ce/?integrating-feedback-survey-young-adults

Abbreviations: EMR, electronic medical record; PCP, primary care physician; TRA, transition readiness assessment; YA, young adult.