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. 2024 Jul 20;13(14):4249. doi: 10.3390/jcm13144249

Table 1.

Descriptive characteristics of the caregivers sample (N = 80).

How many children do you have? %
1 child 47.3
2 children 36.3
3 children 12.5
More than 3 children 3.9
How many have disabilities?
One child with a disability 85
Two children with a disability 12.5
Three children with a disability 2.5
What is your employment status?
Self-employed 25
Full-time employed 35
Part-time employed 16.3
Not employed 23.7
What is your income bracket?
from EUR 32,000.01 to EUR 40,000.00 2.5
from EUR 40,000.01 to EUR 48,000.00 1.3
from EUR 16,000.01 to EUR 24,000.00 37.4
from EUR 24,000.01 to EUR 32,000.00 2.5
from EUR 8000.01 to EUR 16,000.00 41.3
up to EUR 8000.00 15
Where do you reside?
Center 5
Isles 65
North 15
South 15
What type of disability does the person you assist have?
Intellectual/Cognitive 81
Physical/Motor 10
Both 9
How many hours a day are you engaged in caregiving?
Less than two hours 2.5
From three to six hours 22.5
More than six hours 75
The level of dependency of the family member you assist is:
Severe 43.8
Moderate 42.5
Mild 12.5
None 1.3
With the assisted person:
Lives in the same city 1.3
Lives nearby 1.3
Co-lives in the same house 97.5
How long have they been taking care of their family member?
For over five years 75
For over three years 15
For over a year 5
Since birth 5
What motivated you to take care of your family member?
Out of love and affection 87.57
Due to responsibility and a sense of duty 9.42
Because I had no other choice: no one else could take care of them 3.01
How often does your caregiving activity occur?
At least once every fifteen days 1.3
Multiple times a week 6.3
Daily 90
Once a week 2.5
On average, how many hours per week do you dedicate to caregiving activities?
Up to 20 h 8.8
Up to 40 h 20
Up to 70 h 31.3
Over 70 h 40
Do you feel you need help?
Sometimes 32.5
Frequently 50
Never 3.8
Very frequently 13.8
How do you rate the burden of caregiving activities for your family member?
Light 5
Very heavy 11.3
Heavy 51.2
Manageable 32.5
Have you recently experienced:
Crying spells 20.79
Outbursts of anger 16.68
Symptoms of excessive tiredness 40.38
Insomnia 22.46
Do you believe caregiving has deteriorated your quality of life and social relationships?
Partially 52.5
Not at all 6.3
Significantly 41.3
Do you seek assistance in carrying out caregiving activities?
No 25
Yes 75
Do you rely on informal help?
Family member 85.8
Babysitter 0.65
Untrained caregiver 0.65
Neighbors 0.65
Volunteers 3.75
None 7.6
“Autism Space” 1.3
Do you attend a day center?
No 52.5
Yes 47.5
How much does the cost of caring for your family member affect your income?
Lightly 23.8
Very heavily 15
Heavily 61.3