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Empirical referents: how studies of end of life in the pediatric intensive care unit have operationalized the concept of a “good death”
| Type of technique | Experience of end-of-life care | Quality of end-of-life care | Outcomes of end-of-life care |
|---|---|---|---|
| Quantitative | Interviews | Interviews, parent participation in instrument development | Interviews, open-ended surveys |
| Qualitative | Surveys | Standardized instruments | Standardized measures of depression, anxiety, grief or complicated grief, coping |
