FIGURE 1.

EPOC assessments in late‐onset Pompe disease. Domains affected in adults living with Pompe disease and minimal set of outcome measures. 6MWT, 6‐min walk test; BPI, Brief Pain Inventory; ERT, enzyme replacement therapy; FSS, Fatigue Severity Scale; FVC, Forced Vital Capacity; MIP/MEP, maximum inspiratory/expiratory pressure; MRC, the Medical Research Council grading scale (ranging from 0 to 5); R‐PACT, Rasch‐built Pompe‐specific activity scale; Timed tests, walking 10 m, climbing four steps, standing up from supine position and standing up from a chair.