Table 1.

Role of health professionals in the management of PWS.

Health professional	Roles/problems in PWS
Community paediatrician	Development EHCP/links with school/AHPs/other services
Dentist	Poor enamel and increased dental caries
Dietitian	Food diary, calorie count recommendation Different phases of nutritional management
Endocrinologist (paediatric and adult)	Assessment of growth and puberty Initiation and management of growth hormone/sex steroid therapy Coordinator of Care
Geneticist	Counselling
Gynaecologist (if needed)	Adolescent/oestrogen replacement
Occupational therapist	Fine motor and sensory
Ophthalmologist	Strabismus, amblyopia and refractive errors
Orthopaedic/spinal surgeon	Risk of scoliosis in early childhood and late childhood/adolescence Assessment and management (bracing/surgery)
Psychiatry/psychology/CAMHS	Mental health and behavioural challenges
Respiratory physician	Central apnoea and obstructive apnoea – sleep disordered breathing problems Sleep studies/non-invasive ventilation
Social worker	Early help/child with disabilities team
Specialist nurse (endocrine/learning disability)	Advice and support
Speech and language therapist	Delayed eating and language disorder
Surgeon/urologist	Undescended testes and orchidopexy
Family support group (PWS associations)	Support and resources for families