Table 2.

HRQOL¹ Domains, Quotations and PROMIS² Measures

HRQOL Domains	Example Quotation	N (%)	PROMIS Measures³	Short Form	CAT⁴
Physical Health		N=25

General Physical Function	“I’m able to do light housework. Grocery shopping is a bit of a chore, lifting the groceries into the house; I get tired and lose my breath kind of easily, so I need help with that.”	25 (100%)	Mobility		X
			Physical Function	X	X
			Upper Extremity	X	X

Pain	“I had no idea my ribs would hurt. My ribs still hurt and we’re over 2½ months out”	24 (96%)	Pain Interference	X	X
			Pain Behavior	X	X
			Pain Intensity	X
			Nociceptive Pain Quality	X

Fatigue	“There are a lot of things that I want to go and do, but I end up not doing them because I don’t have the energy to get up and do it.”	24 (96%)	Fatigue	X	X

Dyspnea	“Staircases are kind of a problem for me. I get up to the top and I am a little bit on the winded side.”	19 (76%)	Dyspnea Functional Limitations	X	X
			Dyspnea Severity	X	X
			Dyspnea Characteristics	X
			Dyspnea Emotional Response	X
			Dyspnea Task Avoidance	X
			Dyspnea Time Extension	X

Strength	“There’s no way at two to four weeks I would have been able to go back to work and resume my normal activities. I didn’t have the strength.”	12 (48%)	None Available

Sleep	“In terms of pain, nighttime was the hardest because you can’t sleep on your side, only on your back, elevated.”	11 (44%)	Sleep Disturbance	X	X
Sleep		11 (44%)	Sleep-Related Impairment	X	X

Neuropathic Pain	“It’s a very sharp, shooting, stabbing pain.”	7 (28%)	Neuropathic Pain Quality	X

Breast Pain	“I still have that pain in my breast. So I’d say it shoots from the nipple all the way through the breast.”	6 (24%)	None Available

Numbness	“I had read that your skin would be numb, but I hadn’t realized it would be such a big part of me and that it would still be there, you know, 10 weeks later.”	6 (24%)	None Available

Cough	“I expected pain, but I did not expect the cough, and I’m still troubled by the cough. It’s been the most troubling thing of my recovery.”	5 (20%)	None Available

Social Health

Instrumental Support	“My granddaughter and my daughter were there. They’ve come over to help do things around here.”	25 (100%)	Instrumental Support	X	X

Emotional Support	“I have a good support system. I have a fiancé that is very dedicated to keeping my spirits up.”	22 (88%)	Emotional Support	X	X

Companionship	“I get together with my family and have a barbeque and just enjoy the people around me, my grandkids. You know, watching them.”	14 (56%)	Companionship	X

Informational Support	“The advice I would give to someone in this position is to make sure that you take somebody with you when you go to your first consultations with your doctor because you are going to miss things. You need other people there writing this down, asking other questions that you may not have even thought of, which happened to me. My son had questions I never even thought of.”	9 (36%)	Informational Support	X	X

Emotional Health

Positive Emotions Relief Hope	“I think having a positive attitude before, during and after surgery is vital to recovery.”	24 (96%)	General Life Satisfaction	X	X
			Meaning and Purpose	X	X
			Positive Affect	X	X

Depression Sadness Hopelessness	“I think the pain is the number one thing that affects my mood. When I’m really hurting, it’s not happy.”	16 (64%)	Depression	X	X

Anxiety Fear Worry	“I had some anxiety issues, some stress, you know, getting overwhelmed. They had me work on breathing and controlling my breathing to help calm me down. That actually did help calm me down a lot and it helped control some of the pain.”	16 (64%)	Anxiety	X	X

Anger Frustration	“The nerve pain I am experiencing now ticks me off. When I hear reports of it can go as quickly as it came, can last a few months, or your whole life, I get upset.”	15 (60%)	Anger	X	X

Health-Related Quality of Life

Patient-Reported Outcomes Measurement Information System

PROMIS measures available at healthmeasures.net

⁴

Computer Adaptive Test