Table 2.

Example of a coding scheme

Codes based on the literature review and defined in the interview guide	Codes added throughout the process:
Code: Management of HAE Sub-codes: Frequency of attacks Description of an attack Attack management Self-administration training Emergency room experience Attack triggers Diary	Code: Management of HAE Sub-codes: Family history Code: Experience with paediatric care Sub-code: Paediatric care experience at the Centre(s) Impact on child’s daily endeavours (e.g. school, nursery)