Table 1.
Participant demographic and clinical information
| All patients (N=289) | Patients with vs. without 12-month Follow-up |
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|---|---|---|---|---|---|
| Without (n=150) | With (n=139) | ||||
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| Variable | Mean (SD) | Mean (SD) | Mean (SD) | p | |
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| Age (patients) | 12.4 (4.7) | 12.2 (4.6) | 12.4 (4.8) | 0.714 | |
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| Age (parents) | 43.0 (7.0) | 42.6 (6.9) | 43.3 (7.2) | 0.391 | |
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| Year since the most recent treatment | 0.39 (1.2) | 0.41 (1.3) | 0.35 (1.1) | 0.531 | |
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| Variable | Categories | % | % | % | |
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| Gender (Patients) | Male | 54.5 | 54.7 | 54.7 | 0.999 |
| Female | 45.6 | 45.3 | 45.3 | ||
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| Gender (Parents) | Male | 17.4 | 19.9 | 15.1 | 0.315 |
| Female | 82.6 | 80.2 | 84.9 | ||
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| Race | White | 78.6 | 75.2 | 83.5 | 0.492 |
| Black or African-American | 7.1 | 10.1 | 3.3 | ||
| Asian | 3.2 | 3.1 | 3.3 | ||
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| Does your child go to school? | Yes | 93.0 | 90.8 | 96.0 | 0.098 |
| No | 7.0 | 9.2 | 4.0 | ||
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| Type of classroom attending | Mainstream classroom, no IEP | 49.6 | 50.0 | 48.3 | 0.432 |
| Mainstream classroom, with IEP | 35.3 | 35.6 | 35.6 | ||
| Special education classroom within a regular school | 7.1 | 5.9 | 8.5 | ||
| Special education school | 1.3 | 2.5 | 0.0 | ||
| Other | 6.7 | 5.9 | 7.6 | ||
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| How do you rate your child’s quality of life in general? | Poor | 1.2 | 2.3 | 0.0 | 0.197 |
| Fair | 11.4 | 12.4 | 10.6 | ||
| Good | 27.5 | 23.3 | 31.7 | ||
| Very good | 37.3 | 41.1 | 33.3 | ||
| Excellent | 22.8 | 20.9 | 24.4 | ||
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| Histology | Low grade glioma | 23.5 | 25.7 | 21.7 | 0.044 |
| Medulloblastoma & other embryonal tumors | 22.8 | 18.9 | 26.8 | ||
| Glioneuronal tumor | 11.1 | 5.4 | 16.7 | ||
| Ependymoma | 7.3 | 6.8 | 8.0 | ||
| Germinoma | 6.9 | 6.1 | 7.3 | ||
| High grade glioma | 5.5 | 7.4 | 3.6 | ||
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| Current Status of Tumor | Initial diagnosis only | 86.3 | 81.5 | 91.3 | 0.017 |
| Recurrent | 13.7 | 18.5 | 8.7 | ||
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| Treatments received | None | 4.5 | 4.1 | 5.1 | 0.222 |
| 1 of 3 possible treatments | 24.2 | 27.7 | 19.6 | ||
| 2 of 3 possible treatments | 33.2 | 35.1 | 31.9 | ||
| Chemo+radiation+surgery | 38.1 | 33.1 | 43.5 | ||
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| Treatments | Radiation (missing=3) | 0.018 | |||
| No radiation | 39.5 | 39.2 | 39.9 | ||
| <=1 year | 29.4 | 35.8 | 22.5 | ||
| > 1 year | 31.1 | 25.0 | 37.7 | ||
| Chemotherapy (missing=6) | <0.001 | ||||
| No chemotherapy | 25.5 | 34.7 | 15.4 | ||
| <=1 year | 37.8 | 38.1 | 37.5 | ||
| > 1 year | 36.7 | 27.2 | 47.1 | ||
| Surgery (missing n=5) | 0.866 | ||||
| No surgery | 28.9 | 28.4 | 29.2 | ||
| <=1 year | 21.3 | 22.3 | 19.7 | ||
| > 1 year | 49.8 | 49.3 | 51.1 | ||
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| Type of radiation received | Photon | 44.7 | 51.1 | 38.8 | 0.271 |
| Proton | 52.9 | 46.6 | 58.8 | ||
| Both photon and proton | 2.4 | 2.3 | 2.5 | ||
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| Years since last treatment | <= 1 year | 83.9 | 84.1 | 83.5 | 0.886 |
| > 1 year | 16.1 | 15.9 | 16.5 | ||
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| Performance Status Rating | 50 | 0.7 | 0.7 | 0.8 | 0.121 |
| 60 | 2.2 | 2.9 | 1.5 | ||
| 70 | 2.2 | 3.6 | 0.8 | ||
| 80 | 11.0 | 15.0 | 6.9 | ||
| 90 | 29.3 | 29.3 | 29.2 | ||
| 100 | 54.6 | 48.6 | 60.8 | ||