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. Author manuscript; available in PMC: 2025 Jul 1.
Published in final edited form as: J Cyst Fibros. 2024 Feb 15;23(4):676–684. doi: 10.1016/j.jcf.2024.02.001

Table 2.

CHEC-SC participant CFTR genotypes by modulator treatment at enrollment.

IVA (N=536) LUM/IVA (N=785) TEZ/IVA (N=697) ELE/TEZ/IVA (N=1769)

F508del with F508del - 784 (99.9%) 626 (89.8%) 1002 (56.6%)
F508del with 379 (70.7%) 1 (0.1%) 53 (7.6%) 734 (41.5%)
 G551D 172 (32.1%) - - 62 (3.5%)
 Other gating mutation 24 (4.5%) - - 8 (0.5%)
 R117H 63 (11.8%) - 1 (0.1%) 32 (1.8%)
 Splice mutation 61 (11.4%) - 29 (4.2%) 46 (2.6%)
 Missense mutation 56 (10.4%) - 17 (2.4%) 63 (3.6%)
 Minimal function mutation 2 (0.4%) 1 (0.1%) 1 (0.1%) 437 (24.7%)
 Other mutation 1 (0.2%) - 5 (0.7%) 86 (4.9%)
G551D with 71 (13.2%) - - 9 (0.5%)
 G551D 1 (0.2%) - - -
 Other gating mutation - - - -
 R117H 3 (0.6%) - - -
 Splice mutation 2 (0.4%) - - -
 Missense mutation 7 (1.3%) - - -
 Minimal function mutation 53 (9.9%) - - 8 (0.5%)
 Other mutation 5 (0.9%) - - 1 (0.1%)
Other gating mutation with 11 (2.1%) - - 2 (0.1%)
 Other gating mu. ation 1 (0.2%) - - -
 R117H - - - -
 Splice mutation 1 (0.2%) - - -
 Missense mutation - - - 1 (0.1%)
 Minimal function mutation 5 (0.9%) - - -
 Other mutation 4 (0.7%) - - 1 (0.1%)
R117H with 25 (4.7%) - 2 (0.3%) 6 (0.3%)
 R117H - - - -
 Splice mutation 2 (0.4%) - 2 (0.3%) 1 (0.1%)
 Missense mutation 4 (0.7%) - - -
 Minimal function mutation 17 (3.2%) - - 4 (0.2%)
 Other mutation 2 (0.4%) - - 1 (0.1%)
Splice with 25 (4.7%) - 12 (1.7%) -
 Splice mutation 2 (0.4%) - 1 (0.1%) -
 Missense mutation 1 (0.2%) - - -
 Minimal function mutation 22 (4.1%) - 9 (1.3%) -
 Other mutation - - 2 (0.3%) -
Missense mutation with 22 (4.1%) - 4 (0.6%) 8 (0.5%)
 Missense mutation 4 (0.7%) - 1 (0.1%) -
 Minimal function mutation 15 (2.8%) - 3 (0.4%) 5 (0.3%)
 Other mutation 3 (0.6%) - - 3 (0.2%)
Minimal function mutation with 3 (0.6%) - - 8 (0.5%)
 Minimal function mutation - - - 4 (0.2%)
 Other mutation 3 (0.6%) - - 4 (0.2%)
Other mutations - - - -

Most frequent ten mutations by category. Full list of mutations by type can be found in the Supplemental Table S2.

Other gating mutations include: G1244E, G178R, G551S, S1251N, S1255P, S549N, S549R; Splice mutations include: 2789+5G->A, 3272–26A->G, 3849+10kbC->T, 711+3A->G E831X; Missense mutations include: A455E, D1152H, L206W, P67L, R117C, R347H, R352Q, S492F, S945 L, T338I; Minimal function mutations include: 1717–1G->A, 2184insA, 3659delC, 621+1G->T, G542X, I507 del, N1303K, R347P, R553X, W1282X

IVA = ivacaftor; LUM = lumacaftor; TEZ = tezacaftor; ELE = elexacaftor.