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. 2024 Aug 14;12:115. doi: 10.1186/s40337-024-01061-5

Table 3.

Included study characteristics

Author(s), Year and Location Aim(s) Sample Characteristics: size (N), age, gender, ethnicity, diagnosis (Dx) Treatment Setting,
Length of Stay (LoS)
Recruitment Data Analysis and Data Collection

Biddiscombe et al., 2018

Australia

To explore the experience of occupational therapy food groups in supporting functional recovery in an adult ED day program.

N = 99

Age: 26 (17–41)

Gender: 98% F, 1% M

Ethnicity: NR

Dx: 11% AN, 30% BN, 3% BED, 45% EDNOS, Missing 10%

Setting: Specialist day-patient (4 days / week)

LoS: 0.14 – 27 weeks

Invitation to past patients upon discharge from day program during a specified period

Open ended questions (discharge and follow up questionnaires)

Thematic Analysis

(adopting an inductive approach)

Clark Bryan et al., 2022

United Kingdom

To explore the process of transitioning from intensive treatment to the community.

N = 11

Age: 24.8 (16.8-32.8)

Gender: 87% F, 13% M

Ethnicity: 100% White

Dx: 100% AN

Setting: Specialist inpatient and day-patient (various)

LoS: NR

Invitation to past patients post discharge from intensive treatment during a specified period

Semi-structured interviews

Thematic Analysis

(adopting an inductive approach)

Cockell et al., 2004

Canada

To identify factors that help or hinder the maintenance of change and the promotion of recovery during the 6 months following ED treatment.

N = 32

Age: 27.9 (17.8-38)

Gender: 100% F

Ethnicity: NR

Dx: NR

Setting: Specialist inpatient (15-week program)

LoS: NR

Invitation to past patients 6 months post discharge from inpatient treatment

Semi-structured interviews

Grounded Theory

Eli, 2014

Israel

To explore the experiences of specialist ED inpatient treatment in Israel.

N = 13

Age: NR (18–38)

Gender: 92.3% F, 7.7% M

Ethnicity: NR

Dx: 92.3% AN, 7.7% BN

Setting: Specialist inpatient

LoS: NR “considerable variations”

Invitation to past patients through various sources years after admission, as part of a longitudinal anthropology study

Semi-structured interviews

Interpretative Phenomenological Analysis

Federici & Kaplan, 2008

Canada

To explore views of relapse and recovery in the first year following intensive treatment.

N = 15

Age: 26 (19.5-32.5)

Gender: 100% F

Ethnicity: 100% White

Dx: 100% AN

Setting: Specialist day-patient and inpatient

LoS: NR

Invitation one year following discharge to past patients with discharge BMI ≥ 20

Semi-structured interviews

Phenomenological Approach

Fox & Diab, 2015

United Kingdom

To explore experiences of living with and being treated for chronic AN in an inpatient treatment setting.

N = 6

Age: 27 (19–50)

Gender: 100% F

Ethnicity: 100% White British

Dx: 100% AN

Setting: Specialist inpatient

LoS: 4-27 months

Invitation to current inpatients during a specified period

Semi-structured interviews

Interpretative Phenomenological Analysis

Hannon et al., 2017

United Kingdom

To explore experiences of long term intensive community treatment for individuals with severe AN.

N = 5

Age: NR (23–30)

Gender: 100% F

Ethnicity: 100% White British

Dx: 100% AN

Setting: Intensive community treatment

LoS: NR

Invitation to current and past patients who had received a full package of treatment during a specified period

Semi-structured interviews

Interpretative Phenomenological Analysis

Hedlund & Landgren, 2017

Sweden

To elucidate experiences of receiving acupuncture as a complement to treatment as usual in inpatient treatment.

N = 9

Age: 30 (22–55)

Gender: 100% F

Ethnicity: NR

Dx: 100% AN

Setting: Specialist inpatient

LoS: NR

Invitation to current patients receiving acupuncture during a specified period

Narrative interviews

Phenomenological Hermeneutic Method

Holmes et al., 2021

United Kingdom

To explore the experience of trust in inpatient treatment.

N = 14

Age: NR (20–42)

Gender: 100% F

Ethnicity: 78.6% White British, 21.4% White Jewish, 7.1% White American, 7.1% Other

Dx: 100% AN

Setting: Specialist inpatient (various)

LoS: NR

Invitation to past patients through an ED charity website and social media

Semi-structured interviews

Thematic Analysis (within a poststructural, discourse-analytic framework)

İnce et al., 2023

United Kingdom

To explore the intensive treatment experiences of individuals with severe AN and their carers.

N = 6

Age: NR

Gender: 100% F

Ethnicity: NR

Dx: 100% AN

Setting: Specialist inpatient and day-patient (various)

LoS: NR

Invitation to past patients via email after routine 6-month follow-up assessment questionnaire completion

Semi-structured interviews

Reflexive Thematic Analysis

Larsson et al., 2018

United Kingdom

To explore experiences of a perfectionism group intervention during inpatient treatment.

N = 14

Age: 27.4 (19.7-35.1)

Gender: 100% F

Ethnicity: NR

Dx: 100% AN

Setting: Specialist inpatient

LoS: NR

Invitation to current patients following completion of perfectionism group during a specified period

Focus groups

Thematic Analysis

Long et al., 2011

United Kingdom

To investigate inpatient perceptions of mealtimes on specialist ED units.

N = 12

Age: 22.1 (17.4-29.5)

Gender: 100% F

Ethnicity: NR

Dx: 100% AN

Setting: Specialist inpatient (various)

LoS: NR

Invitation to current inpatients from ED units (three public, one independent) during a specified period

Semi-structured interviews

Thematic Analysis

Mac Donald et al., 2023

Denmark

To explore experiences of patients with AN who have experienced multiple involuntary treatment events.

N = 7

Age: NR (states 20–30 s)

Gender: 100% F

Ethnicity: NR

Dx: 100% AN

Setting: NR

LoS: NR

Invitation to past patients of specialised units, the Danish patient organization, and the Danish Society for EDs (via flyers, websites, social media)

Semi-structured interviews

Reflexive Thematic Analysis (adopting an inductive approach)

Matthews et al., 2019

Australia

To examine development and implementation of a day treatment program from patient and provider perspectives.

N = 11

Age: NR (17–33)

Gender: 100% F

Ethnicity: NR

Dx: 81.8% AN, 18.1% Missing

Setting: Specialist day-patient

LoS: NR

Invitation to all patients attending the day patient program during a specified period

Semi-structured interviews

Framework Method

Matthews-Rensch et al., 2023

Australia

To describe the acceptability of a 7-day nasogastric refeeding protocol with adults with medically unstable EDs and staff involved in their treatment.

N = 8

Age: 22 (18–27)

Gender: 100% F

Ethnicity: NR

Dx: 75% AN, 25% OSFED

Setting: Acute – medical stabilisation

LoS: NR

Invitation to all participants undergoing refeeding during a specified period

Semi-structured interviews

Framework Method

Money et al., 2011

United Kingdom

To explore patients’ experiences of CREST (Cognitive Remediation and Emotion Skills Training) during inpatient treatment.

N = 28

Age: 25 (13–40)

Gender: 96.4% F, 3.6% M

Ethnicity: NR

Dx: 100% AN

Setting: Specialist inpatient

LoS: NR

Invitation to current patients who had completed CREST during inpatient treatment during a specified period

Open ended questions, as part of end of therapy reflection form.

Content Analysis

O’Connell, 2023

United Kingdom

To examine one individual’s lived experience of the diagnosis and treatment of anorexia nervosa.

N = 1

Age: NR

Gender: 100% F

Ethnicity: NR

Dx: 100% AN

Setting: Specialist inpatient (various)

LoS: NR (study relates to four admissions)

Not applicable.

Personal diaries and community and hospital medical records.

Autoethnography

Pemberton & Fox, 2013

United Kingdom

To understand factors important in the care and emotional management of EDs in inpatient treatment.

N = 8

Age: NR (states that 7 were under 25)

Gender: 87.5% F, 12.5% M

Ethnicity: NR

Dx: 100% AN

Setting: Specialist inpatient (two, one also with an intensive care unit)

LoS: 0.5 – 6 months

Invitation to current patients of two inpatient units during a specified period

Semi-structured interviews

Grounded Theory

Rienecke et al., 2023

United States of America

To understand the patients’ perspectives of involuntary treatment in an acute medical stabilisation unit.

N = 30

Age: 30.8 (20–54)

Gender: 87% F, 10% M, 3% non-binary

Ethnicity: 100% White

Dx: 100% AN

Setting: Acute – medical stabilisation

LoS: 7-74 days

Invitation to past patients who had been admitted involuntarily to the acute medical stabilisation unit.

Semi-structured interviews

Thematic Analysis

Ross & Green, 2011

United Kingdom

To consider whether inpatient admission was a therapeutic experience for two women with AN.

N = 2

Age: NR (states both >18)

Gender: 100% F

Ethnicity: NR

Dx: 100% AN

Setting: Specialist IP inpatient

LoS: NR

Invitation to current patients during a specific period

Semi-structured interviews

Thematic Narrative Analysis

Seed et al., 2016

United Kingdom

To explore how people with AN experience detention under the Mental Health Act and how these experiences impact on recovery.

N = 12

Age: 28.1 (18–43)

Gender: 100% F

Ethnicity: NR

Dx: 100% AN

Setting: Specialist inpatient (various)

LoS: NR

Invitation to current and past inpatients with experience of detention through one independent ED service, two National Health Service ED services, and an ED charity website

Semi-structured interviews

Grounded Theory

Sly et al., 2014

United Kingdom

To examine the experiences of developing therapeutic alliance during inpatient treatment for an ED.

N = 8

Age: 25 (18–34)

Gender: 100% F

Ethnicity: 100% White

Dx: 100% AN

Setting: Specialist inpatient

LoS: NR

Invitation to current inpatients during a specific period

Semi-structured interviews

Interpretative Phenomenological Analysis

Smith et al., 2016

United Kingdom

To explore the experiences of women currently undergoing specialist inpatient treatment for AN.

N = 21

Age: 25.2 (18–41)

Gender: 100% F

Ethnicity: NR

Dx: 100% AN

Setting: Specialist inpatient

LoS: 2-28 weeks

Invitation to current inpatients through a patient community meeting

Semi-structured interviews

Thematic Analysis (adopting a realist and inductive approach)

Solhaug & Alsaker, 2021

Norway

To explore how patients with severe EDs experience inpatient treatment, and how they value the impact of their experiences in treatment.

N = 3

Age: NR (18–30)

Gender: NR

Ethnicity: NR

Dx: NR

Setting: Specialist inpatient

LoS: NR

Invitation to current inpatients during a specified period

Diary entries

Thematic Analysis (adopting an interpretive approach)

Strand et al., 2017

Sweden

To explore patients’ experiences of participating in a self-admission program at a specialist ED unit.

N = 16

Age: 31 (18–56)

Gender: 94% F, 6% M

Ethnicity: NR

Dx: 100% AN

Setting: Specialist inpatient

LoS: NR

Invitation to current and past inpatients enrolled in a self-admission program

Semi-structured interviews

Content Analysis

Whitney et al., 2008

United Kingdom

To explore service users’ experiences and perspectives towards receiving CRT (Cognitive Remediation Therapy) during inpatient treatment.

N = 19

Age: 30.3 (17–54)

Gender: 100% F

Ethnicity: NR

Dx: 100% AN

Setting: Specialist inpatient

LoS: NR

Invitation for feedback from current patients receiving CRT during their penultimate CRT session.

Feedback letters

Grounded Theory

Williams et al., 2020

Canada

To explore the characteristics, outcomes and experiences of young adults accessing residential ED treatment.

N = 39

Age: 20.2 (18–24)

Gender: 97.4% F, 2.6% non-binary

Ethnicity: NR

Dx: NR

Setting: Specialist inpatient

LoS: 1-4.6 months

Invitation to current inpatients during a specified period

Semi-structured interviews

Thematic Analysis

Wright & Hacking, 2012

United Kingdom

To explore the lived experience of therapeutic relationships between women with AN and their healthcare professionals.

N = 6

Age: NR (21–44)

Gender: 100% F

Ethnicity: 100% White British

Dx:100% AN

Setting: Specialist day-patient

LoS: NR

Invitation to current day-patients and their healthcare professionals during a specified period

Semi-structured interviews

Thematic Analysis

Yim et al., 2023

United Kingdom

To explore patients’ experiences and perceptions of the utility of clinical team meetings (ward rounds)

N = 6

Age: NR

Gender: 100% F

Ethnicity: NR

Dx: NR

Setting: Specialist inpatient

LoS: NR

Invitation to current inpatients during a specified period

Focus groups and one semi-structured interview

Reflexive Thematic Analysis

Zugai et al., 2018

Australia

To understand the nature of therapeutic alliance between nurses and patients with AN in inpatient treatment.

N = 34

Age: 20 (NR)

Gender: 97% F, 3% M

Ethnicity: NR

Dx: 100% AN

Setting: Mixture of specialist ED and general mental health inpatient units

LoS: NR

Invitation to current inpatients with experience of at least one week of treatment in one of six inpatient wards.

Semi-structured interviews

Thematic Analysis (adopting a deductive and inductive approach)

Note. BMI = Body Mass Index; NR = Not Reported; LoS = Length of stay; F = Female; M = Male; AN = Anorexia Nervosa; BN = Bulimia Nervosa; BED = Binge Eating Disorder; EDNOS = Eating Disorder Not Otherwise Specified; OSFED = Other Specified Feeding and Eating Disorder