Table 3.
Included study characteristics
| Author(s), Year and Location | Aim(s) | Sample Characteristics: size (N), age, gender, ethnicity, diagnosis (Dx) | Treatment Setting, Length of Stay (LoS) |
Recruitment | Data Analysis and Data Collection |
|---|---|---|---|---|---|
|
Biddiscombe et al., 2018 Australia |
To explore the experience of occupational therapy food groups in supporting functional recovery in an adult ED day program. |
N = 99 Age: 26 (17–41) Gender: 98% F, 1% M Ethnicity: NR Dx: 11% AN, 30% BN, 3% BED, 45% EDNOS, Missing 10% |
Setting: Specialist day-patient (4 days / week) LoS: 0.14 – 27 weeks |
Invitation to past patients upon discharge from day program during a specified period Open ended questions (discharge and follow up questionnaires) |
Thematic Analysis (adopting an inductive approach) |
|
Clark Bryan et al., 2022 United Kingdom |
To explore the process of transitioning from intensive treatment to the community. |
N = 11 Age: 24.8 (16.8-32.8) Gender: 87% F, 13% M Ethnicity: 100% White Dx: 100% AN |
Setting: Specialist inpatient and day-patient (various) LoS: NR |
Invitation to past patients post discharge from intensive treatment during a specified period Semi-structured interviews |
Thematic Analysis (adopting an inductive approach) |
|
Cockell et al., 2004 Canada |
To identify factors that help or hinder the maintenance of change and the promotion of recovery during the 6 months following ED treatment. |
N = 32 Age: 27.9 (17.8-38) Gender: 100% F Ethnicity: NR Dx: NR |
Setting: Specialist inpatient (15-week program) LoS: NR |
Invitation to past patients 6 months post discharge from inpatient treatment Semi-structured interviews |
Grounded Theory |
|
Eli, 2014 Israel |
To explore the experiences of specialist ED inpatient treatment in Israel. |
N = 13 Age: NR (18–38) Gender: 92.3% F, 7.7% M Ethnicity: NR Dx: 92.3% AN, 7.7% BN |
Setting: Specialist inpatient LoS: NR “considerable variations” |
Invitation to past patients through various sources years after admission, as part of a longitudinal anthropology study Semi-structured interviews |
Interpretative Phenomenological Analysis |
|
Federici & Kaplan, 2008 Canada |
To explore views of relapse and recovery in the first year following intensive treatment. |
N = 15 Age: 26 (19.5-32.5) Gender: 100% F Ethnicity: 100% White Dx: 100% AN |
Setting: Specialist day-patient and inpatient LoS: NR |
Invitation one year following discharge to past patients with discharge BMI ≥ 20 Semi-structured interviews |
Phenomenological Approach |
|
Fox & Diab, 2015 United Kingdom |
To explore experiences of living with and being treated for chronic AN in an inpatient treatment setting. |
N = 6 Age: 27 (19–50) Gender: 100% F Ethnicity: 100% White British Dx: 100% AN |
Setting: Specialist inpatient LoS: 4-27 months |
Invitation to current inpatients during a specified period Semi-structured interviews |
Interpretative Phenomenological Analysis |
|
Hannon et al., 2017 United Kingdom |
To explore experiences of long term intensive community treatment for individuals with severe AN. |
N = 5 Age: NR (23–30) Gender: 100% F Ethnicity: 100% White British Dx: 100% AN |
Setting: Intensive community treatment LoS: NR |
Invitation to current and past patients who had received a full package of treatment during a specified period Semi-structured interviews |
Interpretative Phenomenological Analysis |
|
Hedlund & Landgren, 2017 Sweden |
To elucidate experiences of receiving acupuncture as a complement to treatment as usual in inpatient treatment. |
N = 9 Age: 30 (22–55) Gender: 100% F Ethnicity: NR Dx: 100% AN |
Setting: Specialist inpatient LoS: NR |
Invitation to current patients receiving acupuncture during a specified period Narrative interviews |
Phenomenological Hermeneutic Method |
|
Holmes et al., 2021 United Kingdom |
To explore the experience of trust in inpatient treatment. |
N = 14 Age: NR (20–42) Gender: 100% F Ethnicity: 78.6% White British, 21.4% White Jewish, 7.1% White American, 7.1% Other Dx: 100% AN |
Setting: Specialist inpatient (various) LoS: NR |
Invitation to past patients through an ED charity website and social media Semi-structured interviews |
Thematic Analysis (within a poststructural, discourse-analytic framework) |
|
İnce et al., 2023 United Kingdom |
To explore the intensive treatment experiences of individuals with severe AN and their carers. |
N = 6 Age: NR Gender: 100% F Ethnicity: NR Dx: 100% AN |
Setting: Specialist inpatient and day-patient (various) LoS: NR |
Invitation to past patients via email after routine 6-month follow-up assessment questionnaire completion Semi-structured interviews |
Reflexive Thematic Analysis |
|
Larsson et al., 2018 United Kingdom |
To explore experiences of a perfectionism group intervention during inpatient treatment. |
N = 14 Age: 27.4 (19.7-35.1) Gender: 100% F Ethnicity: NR Dx: 100% AN |
Setting: Specialist inpatient LoS: NR |
Invitation to current patients following completion of perfectionism group during a specified period Focus groups |
Thematic Analysis |
|
Long et al., 2011 United Kingdom |
To investigate inpatient perceptions of mealtimes on specialist ED units. |
N = 12 Age: 22.1 (17.4-29.5) Gender: 100% F Ethnicity: NR Dx: 100% AN |
Setting: Specialist inpatient (various) LoS: NR |
Invitation to current inpatients from ED units (three public, one independent) during a specified period Semi-structured interviews |
Thematic Analysis |
|
Mac Donald et al., 2023 Denmark |
To explore experiences of patients with AN who have experienced multiple involuntary treatment events. |
N = 7 Age: NR (states 20–30 s) Gender: 100% F Ethnicity: NR Dx: 100% AN |
Setting: NR LoS: NR |
Invitation to past patients of specialised units, the Danish patient organization, and the Danish Society for EDs (via flyers, websites, social media) Semi-structured interviews |
Reflexive Thematic Analysis (adopting an inductive approach) |
|
Matthews et al., 2019 Australia |
To examine development and implementation of a day treatment program from patient and provider perspectives. |
N = 11 Age: NR (17–33) Gender: 100% F Ethnicity: NR Dx: 81.8% AN, 18.1% Missing |
Setting: Specialist day-patient LoS: NR |
Invitation to all patients attending the day patient program during a specified period Semi-structured interviews |
Framework Method |
|
Matthews-Rensch et al., 2023 Australia |
To describe the acceptability of a 7-day nasogastric refeeding protocol with adults with medically unstable EDs and staff involved in their treatment. |
N = 8 Age: 22 (18–27) Gender: 100% F Ethnicity: NR Dx: 75% AN, 25% OSFED |
Setting: Acute – medical stabilisation LoS: NR |
Invitation to all participants undergoing refeeding during a specified period Semi-structured interviews |
Framework Method |
|
Money et al., 2011 United Kingdom |
To explore patients’ experiences of CREST (Cognitive Remediation and Emotion Skills Training) during inpatient treatment. |
N = 28 Age: 25 (13–40) Gender: 96.4% F, 3.6% M Ethnicity: NR Dx: 100% AN |
Setting: Specialist inpatient LoS: NR |
Invitation to current patients who had completed CREST during inpatient treatment during a specified period Open ended questions, as part of end of therapy reflection form. |
Content Analysis |
|
O’Connell, 2023 United Kingdom |
To examine one individual’s lived experience of the diagnosis and treatment of anorexia nervosa. |
N = 1 Age: NR Gender: 100% F Ethnicity: NR Dx: 100% AN |
Setting: Specialist inpatient (various) LoS: NR (study relates to four admissions) |
Not applicable. Personal diaries and community and hospital medical records. |
Autoethnography |
|
Pemberton & Fox, 2013 United Kingdom |
To understand factors important in the care and emotional management of EDs in inpatient treatment. |
N = 8 Age: NR (states that 7 were under 25) Gender: 87.5% F, 12.5% M Ethnicity: NR Dx: 100% AN |
Setting: Specialist inpatient (two, one also with an intensive care unit) LoS: 0.5 – 6 months |
Invitation to current patients of two inpatient units during a specified period Semi-structured interviews |
Grounded Theory |
|
Rienecke et al., 2023 United States of America |
To understand the patients’ perspectives of involuntary treatment in an acute medical stabilisation unit. |
N = 30 Age: 30.8 (20–54) Gender: 87% F, 10% M, 3% non-binary Ethnicity: 100% White Dx: 100% AN |
Setting: Acute – medical stabilisation LoS: 7-74 days |
Invitation to past patients who had been admitted involuntarily to the acute medical stabilisation unit. Semi-structured interviews |
Thematic Analysis |
|
Ross & Green, 2011 United Kingdom |
To consider whether inpatient admission was a therapeutic experience for two women with AN. |
N = 2 Age: NR (states both >18) Gender: 100% F Ethnicity: NR Dx: 100% AN |
Setting: Specialist IP inpatient LoS: NR |
Invitation to current patients during a specific period Semi-structured interviews |
Thematic Narrative Analysis |
|
Seed et al., 2016 United Kingdom |
To explore how people with AN experience detention under the Mental Health Act and how these experiences impact on recovery. |
N = 12 Age: 28.1 (18–43) Gender: 100% F Ethnicity: NR Dx: 100% AN |
Setting: Specialist inpatient (various) LoS: NR |
Invitation to current and past inpatients with experience of detention through one independent ED service, two National Health Service ED services, and an ED charity website Semi-structured interviews |
Grounded Theory |
|
Sly et al., 2014 United Kingdom |
To examine the experiences of developing therapeutic alliance during inpatient treatment for an ED. |
N = 8 Age: 25 (18–34) Gender: 100% F Ethnicity: 100% White Dx: 100% AN |
Setting: Specialist inpatient LoS: NR |
Invitation to current inpatients during a specific period Semi-structured interviews |
Interpretative Phenomenological Analysis |
|
Smith et al., 2016 United Kingdom |
To explore the experiences of women currently undergoing specialist inpatient treatment for AN. |
N = 21 Age: 25.2 (18–41) Gender: 100% F Ethnicity: NR Dx: 100% AN |
Setting: Specialist inpatient LoS: 2-28 weeks |
Invitation to current inpatients through a patient community meeting Semi-structured interviews |
Thematic Analysis (adopting a realist and inductive approach) |
|
Solhaug & Alsaker, 2021 Norway |
To explore how patients with severe EDs experience inpatient treatment, and how they value the impact of their experiences in treatment. |
N = 3 Age: NR (18–30) Gender: NR Ethnicity: NR Dx: NR |
Setting: Specialist inpatient LoS: NR |
Invitation to current inpatients during a specified period Diary entries |
Thematic Analysis (adopting an interpretive approach) |
|
Strand et al., 2017 Sweden |
To explore patients’ experiences of participating in a self-admission program at a specialist ED unit. |
N = 16 Age: 31 (18–56) Gender: 94% F, 6% M Ethnicity: NR Dx: 100% AN |
Setting: Specialist inpatient LoS: NR |
Invitation to current and past inpatients enrolled in a self-admission program Semi-structured interviews |
Content Analysis |
|
Whitney et al., 2008 United Kingdom |
To explore service users’ experiences and perspectives towards receiving CRT (Cognitive Remediation Therapy) during inpatient treatment. |
N = 19 Age: 30.3 (17–54) Gender: 100% F Ethnicity: NR Dx: 100% AN |
Setting: Specialist inpatient LoS: NR |
Invitation for feedback from current patients receiving CRT during their penultimate CRT session. Feedback letters |
Grounded Theory |
|
Williams et al., 2020 Canada |
To explore the characteristics, outcomes and experiences of young adults accessing residential ED treatment. |
N = 39 Age: 20.2 (18–24) Gender: 97.4% F, 2.6% non-binary Ethnicity: NR Dx: NR |
Setting: Specialist inpatient LoS: 1-4.6 months |
Invitation to current inpatients during a specified period Semi-structured interviews |
Thematic Analysis |
|
Wright & Hacking, 2012 United Kingdom |
To explore the lived experience of therapeutic relationships between women with AN and their healthcare professionals. |
N = 6 Age: NR (21–44) Gender: 100% F Ethnicity: 100% White British Dx:100% AN |
Setting: Specialist day-patient LoS: NR |
Invitation to current day-patients and their healthcare professionals during a specified period Semi-structured interviews |
Thematic Analysis |
|
Yim et al., 2023 United Kingdom |
To explore patients’ experiences and perceptions of the utility of clinical team meetings (ward rounds) |
N = 6 Age: NR Gender: 100% F Ethnicity: NR Dx: NR |
Setting: Specialist inpatient LoS: NR |
Invitation to current inpatients during a specified period Focus groups and one semi-structured interview |
Reflexive Thematic Analysis |
|
Zugai et al., 2018 Australia |
To understand the nature of therapeutic alliance between nurses and patients with AN in inpatient treatment. |
N = 34 Age: 20 (NR) Gender: 97% F, 3% M Ethnicity: NR Dx: 100% AN |
Setting: Mixture of specialist ED and general mental health inpatient units LoS: NR |
Invitation to current inpatients with experience of at least one week of treatment in one of six inpatient wards. Semi-structured interviews |
Thematic Analysis (adopting a deductive and inductive approach) |
Note. BMI = Body Mass Index; NR = Not Reported; LoS = Length of stay; F = Female; M = Male; AN = Anorexia Nervosa; BN = Bulimia Nervosa; BED = Binge Eating Disorder; EDNOS = Eating Disorder Not Otherwise Specified; OSFED = Other Specified Feeding and Eating Disorder