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. 2024 Aug 19;22:113. doi: 10.1186/s12961-024-01187-7

Table 2.

Combined review’s 95 papers on whether research engagement by healthcare organizations and staff improves healthcare

1st author, year Location of study Clinical area Sample: including comparators, such as network membership, or not. (Data type: including, comparators if not apparent from sample, that is, if bibliometric and/or sometimes if “dose” paper) Level of analysis: organization or clinician Findings: positive or negative Improvement (scope of impact)
Abraham 2010 [5] United States Substance use disorder (SUD): alcohol disorders’ medication 127 programmes in the Clinical Trials Network (CTN) of the National Institute on Drug Abuse (NIDA) compared with 244 not in the network. (Data: repeat interviews, including on treatments used.) Organization Positive Processes (broad)
Abraham 2014 [49] United States SUD: 35 treatment services 78 programmes in NIDA’s CTN that participated in at least one protocol compared with 78 CTN programmes that had not participated in any. (Data: interviews, including on treatments used.) Organization Positive Processes (broad)
Alder 1978 [6] United Kingdom Inguinal hernia/varicose veins A health district that hosted a randomized controlled trial (RCT) on early discharge of inguinal hernia and varicose veins patients compared with two adjacent districts that had not. (Data: retrospective, length of stay [LoS].) Organization Positive Processes (specific)
Alotaibi 2017 [50] Canada led; international Intracranial aneurysm neurosurgery 3307 patients of 147 surgeons participating in trials: 42% from the United States; 12% Canada (total 21 countries including in Africa and Central America). (Data: bibliometric [publication “quality”, as measured by H-index, not quantity] compared with retrospective analysis of trial outcomes data.) Clinician Positive-mixed Outcomes (broad)
Andersen 2006 [7] Denmark Asthma: medication in general practice 10 general practices conducting a trial on asthma medication compared to 165 non-trial practices. (Data: observational cohort study on medication used.) Organization Negative N/A
Bennett 2012 [51] United Kingdom Hospital care 147 National Health Service (NHS) hospital Trusts. (Data: bibliometric [citations/admission] compared to hospital mortality data.) Organization Positive Outcomes (broad)
Birkmeyer 2004 [52] United States Cancer: surgery in various cancer sites 27 021 patients at 51 National Cancer Institute (NCI) cancer centres compared with 36 839 patients at 51 high-volume non-NCI centres. (Data: retrospective – Medicare databases for surgical mortality and survival.) Organization Positive-mixed Outcomes (broad)
Brown 1996 [53] United States Hospital care 81 Department Veterans Affairs (VA) hospitals. (Data: retrospective – databases and VA reports on research programme size compared with LoS, costs.) Organization Positive Processes (broad)
Carpenter 2011 [8] United States Cancer: breast 3874 patients: those treated at organizations affiliated with a cancer research network, such as NCI Cooperative Groups, compared with those treated at non-affiliated organizations. (Data: retrospective, Surveillance, Epidemiology and End Results [SEER]-Medicare database – treatments, surgical volume, teaching affiliation.) Organization Positive Processes (broad)
Carpenter 2012 [54] United States Cancer: colon 1029 patients treated at NCI’s Community Clinical Oncology Program (CCOP) practices compared with 3025 at treated at non-CCOP practices. (Data: retrospective, SEER-Medicare database, for 2003–2006 data on four treatments options, see also Penn [87], who analysed same data but for 2003–2005 for just two treatment options.) Organization Positive Processes (broad)
Chaney 2011 [9] United States Depression: collaborative care (in primary care) 288 patients in 7 Veterans Affairs (VA) primary care sites that implemented a collaborative care intervention compared with 258 patients in 3 VA non-intervention primary care sites. (Data: interviews, including on evidence-based care and symptom improvement.) Organization Positive-mixed Processes (specific)
Chen 2006 [10] United States Cancer: laryngeal 31 044 patients at teaching/research facilities (including most NCI Comprehensive Cancer Programs) compared with 29 854 at community cancer centres and 13 447 at community hospitals. (Data: retrospective – National Cancer Database on use of chemoradiation.) Organization Positive Processes (broad)
Clark 2003 [11] Canada Apheresis for various conditions 22 physicians and 19 major medical centres in Canada – some involved in 3 trials of the experimental apheresis therapy, some not. (Data: retrospective, registry data on adoption of the intervention prior to and during the trials—including outside trials; repeat surveys of physicians.) Clinician Negative-mixed N/A
Corrigan 2005 [55] United States New drugs in various clinical fields 2108 physicians involved with specific phase-3 trials compared with same number not involved. (Data: retrospective, databases—matched case control on prescribing.) Clinician Positive Processes (specific)
Das 2008 [12] United Kingdom Barratt’s oesophagus 228 specialists at 107 sites (57 already in a trial): comparisons over time and between specialists at sites already enrolled and those waiting to enter. (Data: repeat surveys of specialists, including on guideline adherence.) Clinician Positive Processes (specific)
de Arriba-Enriquez 2021 [56] Spain Psychiatry The top 50 hospitals with psychiatric wards. (Data: bibliometric [range of quantitative and quality indicators per number of beds] compared with system records on quality-of-care outcomes such as readmissions.) Organization Positive Outcomes (broad)
de Lange 2015 [57] The Netherlands Preterm labour: tocolysis 6489 patients treated in 8 hospitals from 2006 to 11 – comparisons between time before, during and after some patients entered into a trial. (Data: retrospective, LoS data—Obstetric High Care registry; costs.) Organization Positive Processes (specific)
Downing 2017 [58] United Kingdom Cancer: colorectal (CRC) 209 968 patients, 150 NHS Trusts. (Data: retrospective on extent and length of participation in National Cancer Research Network CRC randomized controlled trials [RCTs] compared with outcomes, patient volume and other data.) Organization Positive Outcomes (broad)
Du Bois 2005 [13] Germany Cancer: ovarian 275 patients in 80 trial study group hospitals compared with 201 patients in 85 non-trial study group hospitals (see also Rochon [34, 94]). (Data: surveys; survival data collected up to 2 years after diagnosis, hospital patient volume data also used in multivariable analysis.) Organization Positive Outcomes (broad)
Ducharme 2007 [14] United States SUD: Buprenorphine and behavioural treatments 1006 centres’ treatment compared: some were in the NIDA’s CTN and participated in the trials; some in NIDA’s CTN and did not participate in these trials; some not in NIDA’s CTN. (For contrast—see Rieckmann [91]). (Data: panel longitudinal design, repeat interviews on treatments.) Organization Positive-mixed Processes (specific)
Eaton 2016 [59] United States Cancer: lung 495 patients in a trial by NCI’s Radiation Therapy Oncology Group (RTOG) (which became part of a wider NCI Cooperation Group): 300 in high accrual volume centres compared with 195 in low accrual centres. (Data: secondary analysis of trial data – including overall survival.) Organization Positive Outcomes (broad)
Fanaroff 2019 [60] United States Cardiovascular: myocardial infarction (MI) 453 821 patients in 430 hospitals enrolling at least 1 patient in a clinical trial compared with 138 923 patients in 336 non-trial hospitals. (Data: retrospective – registry data on outcomes, procedures, patient and hospital characteristics.) Organization Positive Outcomes (broad)
Farquhar 2021 [61] United States Cancer: head and neck 463 patients who had been in a 2002–2006 population case–control study; 39 centres: 5 NCI/VA designated academic centres and 9 community cancer centres compared with 25 non-designated community hospitals. (Data: retrospective, on volume; deaths from National Death Index.) Organization Positive-mixed Outcomes (broad)
Fernández-Domínguez 2022 [62] Spain Multiple fields: physiotherapists 419 practicing physiotherapists across Spain – survey responses on their career and role, including time spent on research, compared with their responses on evidence, including its use in practice. (Data: survey – the Health-Sciences Evidence-Based Practice questionnaire.) Clinician Positive Processes (broad)
Fields 2016 [63] United States SUD: Network for the Improvement of Addiction Treatment 458 SUD treatment centres compared: 153 NIDA CTN programmes formed one group to compare with others. (Data: retrospective—used interview data from two earlier studies including on innovations used.) Organization Positive Processes (specific)
Fong 2020 [64] United States Cancer: pancreatic 989 patients treated at NCI-designated centres compared with 2070 at Commission on Cancer (CoC)-accredited centres and 2059 at non-accredited centres. (Data: retrospective – SEER-Medicare database on treatment and survival.) Organization Positive Outcomes (broad)
García-Romero 2017 [65] Spain Hospital care 189 public hospitals – both medical and surgical specialities. (Data: bibliometric [quantity and quality] compared with retrospective hospital data including LoS through detailed statistical/econometric analysis.) Organization Positive Processes (broad)
Gilbert 2013 [66] United States led; international Dental: caries 565 practitioners in an international dental practice-based research network (PBRN) – United States led with three Scandinavian countries. (Data: repeat surveys to assess impact of level of research network participation, full or partial, on increasing evidence-based treatment.) Clinician Positive Processes (broad)
Goldberg 2002 [15] United States Diabetes: primary care management 185 patients at one family medical centre divided into 2 parallel groups for an intervention study to improve routine care. (Data: computerized database, including processes and % of patients inadequately controlled.) Organization Negative-mixed N/A
Hall 2010 [16] United States Veteran rehabilitation: family care Four sites of the VA’s Family Care Collaborative’s intervention – part of its Quality Enhancement Research Initiative; 226 rehabilitation team members – interdisciplinary. (Data: cross-site, mixed-method evaluation; surveys; practice change – before/after care scores at sites.) Organization Positive Processes (specific)
Hébert-Croteau 1999 [17] Canada Cancer: breast 682 patients admitted to hospitals involved in multicentre clinical trials compared to 577 patients admitted to non-trial hospitals. (Data: retrospective – medical charts, oncology registries: guideline adherence.) Organization Positive Processes (broad)
Janni 2005 [18] Germany Cancer: breast 198 medical centres in a very large trial which provided support such as a newsletter and study meetings to a network of participating trial centres. (Data: survey of care provided by centres before and after trial.) Organization Positive Processes (specific)
Jha 1996 [19] Canada Cardiovascular: acute myocardial infarction (AMI) 32 468 patients in two trials: comparisons between trial patients, non-trial patients at trial hospitals, and external hospitals. (Data: retrospective datasets on complicated pattern of treatments and survival.) Organization Positive-mixed Outcomes (specific)
Jones 2000 [20] United States Appendectomy 200 patients treated by 25 surgeons in a hospital where a trial had previously been conducted. (Data: retrospective on type of surgery conducted – review of patient records, survey.) Clinician Negative N/A
Jonker 2015 [67] United Kingdom Hospital care 155 English NHS Hospital Trusts. (Data: retrospective, 1 year’s data [2012–2013] of National Institute for Health Research (NIHR) research activity compared with hospital performance on the overall Care Quality Commission (CQC) risk rating.) Organization Negative N/A
Jonker 2018 [68] United Kingdom Hospital care 129 English NHS Hospital Trusts. (Data: retrospective, 5 years’ data [2012/13–2016/7] on extent of NIHR research activity per clinician compared with a hospital mortality index and overall CQC rating.) Organization Positive Outcomes (broad)
Jonker 2021 [69] United Kingdom Hospital care 129 English NHS Hospital Trusts. (Data: retrospective, 2018–19 data on extent of NIHR research activity per clinician and hospital geographical location, compared with hospital performance on mortality and CQC rating.) Organization Positive-mixed Outcomes (broad)
Karjalainen 1989 [21] Finland Cancer: leukaemia 1978 patients, 21 health districts: 17 in study area exposed to protocol, compared with 4 not exposed. (Data: retrospective – Finnish Cancer Registry for 5-year cumulative relative survival rates.) Organization Positive Outcomes (specific)
Kirkby 2020 [70] United Kingdom Cardiac arrest: Emergency Medical Service providers 498 paramedics participated in an online survey about the effect on them of being part of an RCT of interventions to manage out-of hospital-cardiac arrest. Before and after comparisons. (Data: online survey, and 19 respondent interviews, including on interventions used.) Clinician Positive-mixed Processes (specific)
Kirwan 2014 [71] United Kingdom Cancer: breast 153 patients in 5 previously high trial-recruiting hospitals compared with 43 patients in 5 low/non-recruiting hospitals in same NHS Trust. (Data: retrospective: consecutive computed tomography planning images.) Organization Positive Processes (specific)
Kizer 1999 [22] United States Cardiovascular: AMI medications 8386 patients received into 7 trials (1978–1995) compared in terms of use of medications at enrolment (therefore prescribed by physicians in routine practice) and at discharge (prescribed by physicians in RCTs). (Data: retrospective – case reports on medications prescribed.) Clinician Positive Processes (broad)
Knudsen 2009 [23] United States SUD: buprenorphine 206 treatment centres of the NIDA’s CTN compared for buprenorphine adoption: if participated in drug’s trials or not. (Data: repeat interviews with administrators, 24 months apart, including on treatments used.) Organization Positive Processes (specific)
Laliberte 2005 [24] United States Cancer: breast 16 600 patients in 423 facilities: comparing 77 facilities in two or more NCI networks, with 67 in one NCI network, and with 279 in no network. (Data: retrospective, SEER-Medicare database – guideline concordance.) Organization Positive Processes (broad)
Levan 2014 [72] United States Neonate: intubation 3849 infants, in 11 centres in a trial by National Institute of Child Health and Human Development Neonatal Research Network: the three centres that had been in a feasibility study were compared with the eight that had not. (Data: retrospective, Institute’s registry – pre-/post-trial intubation data.) Organization Positive-mixed Processes (specific)
Lin 2018 [73] United Kingdom Cancer: head and neck 465 patients in 60 hospitals who had been in an NIHR Clinical Research Network (CTN) RCT: compared those treated in hospitals recruiting low numbers to cancer trials with those treated in higher recruiting hospitals. (Data: retrospective – trial recruitment, hospital throughput, survival.) Organization Positive Outcomes (broad)
Litjens 2013 [74] The Netherlands Obstetrics/gynaecology 83 sites, 202 staff (gynaecologists, residents, nurses, midwives) who had variously participated in up to nine trials. (Data: survey of knowledge and implementation of trial findings in each site.) Organization Positive-mixed Processes (specific)
Ljunggren 2022 [75] Sweden Cancer: colorectal 3168 metastatic patients with CRC treated at university hospitals (i.e. research-active) compared with 6800 treated at non-university hospitals. (Data: retrospective – Swedish CRC database and registers data on hospital volume and type, treatment [metastatic surgery] and survival.) Organization Positive Outcomes (broad)
Majumdar 2002 [25] Canada led; North America Cardiovascular: AMI medication 25 886 patients in 659 hospitals in a trial: the 1415 patients in the 22 of those hospitals that were also in an earlier trial compared to the rest. (Data: retrospective – trial data on treatments given.) Organization Negative N/A
Majumdar 2008 [26] United States (led from Canada) Cardiovascular: unstable angina 174 062 patients in 494 hospitals; comparisons between: 123 high trial enrolment hospitals, 226 low trial enrolment, 145 no trial enrolment. (Data: retrospective – data from an observational data collection and improvement initiative on processes, in-hospital mortality, size.) Organization Positive Outcomes (broad)
Manes 2019 [76] United States (led from Israel) Hospital care: 3 fields 50 United States university hospitals: same three departments/wards in each. (Data: bibliometric [see Tchetchik [100]] compared with range of retrospective data on survival, health performance, size, staffing levels, costs, LoS.) Organization Positive Outcomes (broad)
Marmor 2015 [77] United States Hematopoietic cell transplantation 12 993 transplants conducted in 162 centres: compared 24 non-certified centres; 106 certified by a Foundation; and 32 certified by the Foundation and the Blood and Marrow Transplant clinical trials network. (Data: retrospective, from relevant databases: processes and outcomes.) Organization Positive Outcomes (broad)
McBride 2013 [78] United States Dental treatments 950 dental practitioners, most members of one of three dental PBRNs: 378 full network participants compared with 346 partial network participants and 226 inactive or non-members. (Data: survey of practice patterns.) Clinician Positive Processes (broad)
McCarthy 2015 [79] United States Cardiovascular: aortic valve 5009 patients who underwent transcatheter aortic valve replacement at 68 hospitals that had participated in clinical trials compared with 1392 patients treated at 140 non-trial hospitals. (Data: retrospective, Medicare data including on mortality.) Organization Negative N/A
McDaniels-Davidson 2022 [80] United States Cancer: cervical 1395 women in California treated at NCI designated cancer centres compared with 2855 treated other locations in California. (Data: retrospective, California Cancer Registry data – death, guideline-concordant treatment.) Organization Positive Outcomes (broad)
Meineche-Schmidt 2006 [27] Denmark Gastro-oesophageal reflux: primary care treatment 1206 patients enrolled by 122 General practitioners (GPs) (some in earlier trial, some not) in study on the impact of participation in first trial. (Data: prospective – observational study including of treatments given.) Clinician Positive Processes (specific)
Merkow 2014 [81] United States Cancer care 56 NCI-designated cancer centres compared with 1112 CoC-accredited centres and 2395 non-accredited hospitals. (Data: retrospective, Medicare and American Hospital Association – range of process, outcome and cost measures.) Organization Negative N/A
Meyer 2013 [82] United States Cancer: breast surgery 874 patients of CCOP physicians compared with 16 303 patients of non-CCOP physicians. (Data: retrospective: SEER-Medicare database on level of sentinel lymph node biopsy.) Clinician Positive Processes (broad)
Mold 2014 [83] United States Renal: chronic disease 711 patients in 31 primary care practices in 4 primary care PBRNs in first wave; 1179 patients in 58 practices in the PBRNs in second wave. (Data: prospective intervention study; before/after measures of guideline use.) Organization Positive Processes (specific)
Morton 2006 [28] Australia Sexual health 100 patients of 21 clinicians: high recruiters into a relevant trial compared with low recruiters. (Data: retrospective – case notes of clinicians’ practice.) Clinician Positive-mixed Processes (specific)
Murimwa 2023 [84] United States Cancer: pancreatic 3300 patients at four NCI-designated cancer centres in Texas compared with 8969 patients at CoC centres, 1087 at safety net hospitals and 3715 no-designation hospitals; high/low volume hospitals also compared. (Data: retrospective, Texas cancer registry – guideline concordance; survival.) Organization Positive Outcomes (broad)
Ozdemir 2015 [85] United Kingdom Acute care 2 349 160 patients, 140 NHS Trusts: 35 low mortality Trusts, 63 expected level of mortality Trusts, 42 high mortality Trusts. (Data: retrospective, NIHR [Comprehensive] CRN funding/bed compared with outcomes, size, staffing, teaching, etc.) Organization Positive Outcomes (broad)
Pancorbo-Hidalgo 2007 [29] Spain Pressure ulcer nursing care 713 nurses responded to the research activity part of a wider survey: the 138 research active nurses compared with the 575 who were not. (Data: survey, including of level of guideline implementation.) Clinician Positive Processes (broad)
Paulson 2008 [86] United States Cancer: colorectal surgery 1299 patients treated at NCI designated cancer centres compared with 41 262 patients at non-NCI designated hospitals – some high volume. (Data: retrospective: SEER-Medicare database for outcomes, volume.) Organization Positive Outcomes (broad)
Penn 2015 [87] United States Cancer: colon 875 CCOP patients, 2096 non-CCOP; four groups compared: African Americans or Caucasian Americans; treated by CCOP or non-CCOP. (Data: retrospective, SEER-Medicare database, for 2003–2005 data on the use of two drugs, rather than the 2003–2006 use of the four treatment options in Carpenter, 2012 [54].) Organization Positive-mixed Processes (broad)
Pons 2010 [30] Spain Cardiovascular: AMI; congestive heart failure 50 acute hospitals voluntarily participating in a quality initiative and with more than 5 citable heart disease papers 1996–2004. (Data: bibliometric [citation measures] compared with retrospective hospital morality data.) Organization Positive Outcomes (broad)
Prendergast 2018 [88] South Africa-led; international Rheumatic heart disease 22 project sites across Africa (including in South Africa, Egypt, Ethiopia, Kenya, Mozambique, Nigeria, Rwanda, Sudan, Uganda, Zambia) and Yemen in a prospective, multi-centre project. (Data: survey and interview—trial participation impact on patient management.) Organization Positive Processes (specific)
Puoane 2004 [31] South Africa Severe child malnourishment: participatory research, nurse-led in hospitals 98 admissions in 2 rural hospital settings for a participatory “pre- and post-intervention descriptive study”. (Data: retrospective record review, including of fatality rates; structured observations; in-depth interviews; focus group discussions with nursing and medical staff.) Organization Positive-mixed Outcomes (specific)
Rai 2017 [89] United States Cancer: lymphoma 3490 patients of NCI cooperative group-affiliated institutions compared with 2222 patients of non-affiliated institutions. (Data: retrospective: SEER-Medicare database on treatment patterns.) Organization Positive Processes (broad)
Rhyne 2011 [32] United States Diabetes: acanthosis nigricans 145 clinicians who participated in two PBRN trials. (Data: practice change since trials: short-term post-trial survey and 16 interviews for one trial; long-term post-trial surveys for other trial.) Clinician Positive Processes (specific)
Rich 2011 [33] United Kingdom Cancer: small-cell lung 7845 patients in trusts in National Cancer Research Network: 2524 patients in trusts recruiting higher numbers into trials compared to 5321 patients in lower recruiting ones. (Data: retrospective, databases including research network; data on use of chemotherapy and survival.) Organization Positive-mixed Processes (broad)
Rieckmann 2014 [90] United States SUD: buprenorphine 922 counsellors from 172 NIDA CTN-affiliated programmes compared with 1203 counsellors from 251 non-CTN-affiliated programmes. (Data: survey of counsellors, interviews with administrators on the drug’s use.) Clinician Positive Processes (broad)
Rieckmann 2016 [91] United States SUD: motivational interviewing 156 CTN affiliated programmes compared with 345 non-affiliated programmes for a different type of behavioural treatment to one where Ducharme et al. [14] reported no benefit from CTN affiliation. (Data: interviews on the use of a behavioural treatment.) Organization Positive Processes (broad)
Rindal 2014 [92] United States Dental: caries 103 235 treatments between 2005 and 11 provided by 35 dentists in one multi-clinic dental group who had variable levels of engagement in the National Dental PBRN, or no involvement. (Data: natural experiment, retrospective – dental database for use of evidence-based treatments.) Clinician Positive Processes (broad)
Robinson 2019 [93] United Kingdom Stroke: thrombolysis 774 patients recruited in the United Kingdom to an international trial: 502 by 9 high-volume, well-resourced NIHR CRN Hyperacute Stroke Research Centres compared with 272 patients recruited to 24 other United Kingdom NIHR CRN sites. (Data: retrospective, trial endpoint on death or disability at 90 days.) Organization Positive-mixed Outcomes (broad)
Rochon 2011 [34] Germany Cancer: ovarian 275 patients in 80 cooperative trial study group hospitals compared with 201 patients in 85 non-trial study group hospitals. (Data: surveys; third year survival data collected, adding to data in Du Bois, 2005 [13].) Organization Positive Outcomes (broad)
Rochon 2014 [94] Germany Cancer: ovarian 219 patients with advanced cancer treated at trial study group hospitals compared with 133 treated at non-trial study group hospitals. (Data: mediation analysis of retrospective data on survival – this subset of the patient data in Rochon [34] focusses solely on advanced cancer.) Organization Positive Outcomes (broad)
Salbach 2010 [35] Canada Stroke: physical therapist rehabilitation 270 physical therapists returned a completed survey that could be used: 86 had participated in research compared with 182 who said they had not. (Data: cross-sectional mail survey, including on implementing evidence.) Clinician Positive Processes (broad)
Salge 2009 [95] United Kingdom Acute care 173 NHS Trusts. (Data: bibliometric [quantity of publications per staff member] and research and development grants/projects [collectively called science-based innovativeness] compared with retrospective data from a range of sources on mortality, size, etc. [collectively called organizational performance].) Organization Positive Outcomes (broad)
Seaburg 2016 [96] United States Internal medicine 308 Mayo Clinic resident physicians. (Data: bibliometric [publications’ quantity] compared with multi-source clinical performance evaluations.) Clinician Positive Processes (broad)
Shahian 2022 [40] United States Acute care hospitals: multiple care areas 1604 acute care hospitals, which was a random 40% of 4008 Medicare-participating hospitals; the hospitals were divided into three groups by total number of staff publications: > 46, 1–46 or 0. (Data: bibliometric [quantity and quality] compared with retrospective data including on mortality in five major fields, size, teaching, region.) Organization Positive Outcomes (broad)
Shen 2022 [97] China Hospital care 111 965 hospitalizations (random 20% from the Insurance scheme data) treated by 5794 physicians in a Chinese city’s 38 teaching hospitals. (Data: bibliometric [various quantitative and other measures of types of publications] compared with retrospective 30-day readmission data.) Clinician Positive-mixed Outcomes (broad)
Siegel 2006 [36] United States Ear, nose and throat (ENT): otitis media 17 practitioners from 11 practices who had been involved in a PBRN study compared with 18 practitioners who had not been involved. (Data: survey of prescribing in the year before and year after the trial.) Clinician Positive Processes (specific)
Siracuse 2021 [98] United States Chronic limb threatening ischemia (CLI) 9 231 909 CLI patients in the four US regions: participation rates in a relevant ongoing major trial compared with those regions’ total amputation rates. (Data: retrospective – Medicare on number of amputations and ongoing trial database on participation rates.) Organization Positive Outcomes (broad)
Tan 2015 [99] United States Cancer: kidney 1578 CCOP treated patients compared with 4316 non-CCOP treated patients (some non-CCOP patients were treated at other NCI centres). (Data: retrospective: SEER-Medicare database on surgical technologies.) Organization Negative-mixed N/A
Tchetchik 2015 [100] United States (led from Israel) Hospital care: three fields 50 university hospitals – same three departments in each, 4330 physicians. (Data: bibliometric measures [quality more than quantity] [as used in Manes [76]] compared with retrospective data: survival, care quality, etc.) Organization Positive Outcomes (broad)
Trusson 2019 [101] United Kingdom Healthcare: nurses, midwives and Allied Health Professionals 67 members of the NIHR’s East Midlands Clinical Academic Practitioner network identified how research engagement led to patient benefits etc. – implicitly compared with time before their research engagement. (Data: survey and 16 interviews – self-selected and snowball sampling.) Clinician Positive Processes (specific)
Tsang 2015 [102] United Kingdom Cancer: breast radiotherapy 26 sites of trial where National Radiotherapy Trials Quality Assurance Group assisted with adherence to components of trial protocol. (Data: survey of 26 sites to compare before/after, plus earlier Royal College of Radiologists audit of 1386 patients – in 13 trial sites and 37 non-trial.) Organization Positive Processes (specific)
Tsang 2022 [103] Canada Pneumonia: probiotics prevention trial 2203 patients in 34 academic/research hospitals in a trial compared to 352 patients in 7 community, not research, hospitals. (Data: pre-planned observational study nested in main trial – data on patient demographics, interventions, outcomes [mortality] and trial metrics.) Organization Positive Outcomes (broad)
van der Tuuk 2011 [104] The Netherlands Obstetrics: eclampsia 24 709 women delivered at 38 hospitals participating in a trial compared with 18 839 women at 55 non-participating hospitals before, during and after the trial. (Data: retrospective, Perinatal Registry – patient-records on patient management and prevalence of eclampsia.) Organization Positive Outcomes (specific)
Venables 2012 [105] United Kingdom Cancer: breast radiotherapy 51 sites of 7 trials involving the National Radiotherapy Trials Quality Assurance Group over 15 years asked about trial-linked processes. (Data: series of pre-trial and other surveys to facilitate comparisons over time on how trials/protocols help implementation of new techniques.) Organization Positive Processes (specific)
Warnecke 1995 [37] United States Cancer: breast 11 450 records from two evaluations: CCOP physicians in 66 hospitals compared with 24 non-CCOP hospitals in first evaluation, fewer in second. (Data: retrospective, hospital records and SEER registry—treatments.) Clinician Positive Processes (specific)
Wolfson 2015 [106] United States Cancer: 8 adult-onset cancers 4428 patients with cancer at three NCI-designated centres in Los Angeles County compared with 65 151 at non-NCI sites. (Data: retrospective, county cancer registry – data on survival, case-mix and race/socioeconomic status, which used to assess access equity.) Organization Positive Outcomes (broad)
Wuthrick 2014 [107] United States Cancer: head and neck 471 patients in RTOG’s chemoradiation trial: 150 in 13 historically high accrual centres compared with 321 in 88 historically low centres. (Data: retrospective: secondary analysis of trial data on processes/outcomes.) Organization Positive Outcomes (broad)
Yawn 2010 [108] United States Mental health: depression 28 practices, 48 trial-site leaders (e.g. 27 family practitioners and 6 nurses) who participating in a PBRN postpartum depression study. (Data: interviews during trial comparing mid-trial processes to previous ones.) Organization Positive Processes (specific)
Young 2016 [109] Australia ENT: child (speech therapy) 653 children in New South Wales Aboriginal health services received enhanced clinical care compared with baseline (including 5822 speech-language pathology sessions) through a research collaboration. (Data: case study evaluation – prospective interviews/service delivery data.) Organization Positive Processes (specific)

Papers in italics mean they are an original review paper. Papers not in italics mean they are an updated review paper.

AMI acute myocardial infarction, CQC Care Quality Commission, CLI chronic limb threatening ischemia, CRN Clinical Research Network, CTN Clinical Trials Network, CRC colorectal cancer, CoC Commission on Cancer, CCOP Community Clinical Oncology Program, ENT ear, nose and throat, GPs general practitioners, LoS length of stay, MI myocardial infarction, NCI National Cancer Institute, NHS National Health Service, NIHR National Institute for Health (and Care) Research, NIDA National Institute on Drug Abuse, PBRN practice-based research network, RTOG Radiation Therapy Oncology Group, RCTs randomized controlled trials, SUD substance use disorder, R&D research and development, SEER Surveillance, Epidemiology and End Results, VA (Department of) Veterans Affairs